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CysticFibrosis.com Daily

Post Title Member Posted
Tumbleweed GOT THE CALL! Tumbleweed 9:56 PM
How Often Does One Get a Broncoscopy? LouLou 9:40 PM
Letter for Daycare or Nursery sullihs 9:34 PM
New here... just saying hi! hopeforever5583 9:22 PM
Survey LouLou 8:50 PM
Fantastic story! debs2girls 8:24 PM
Cystic Fibrosis & rectum problems JackieAnn 8:08 PM
Side Effects of Medications falbie13 7:49 PM
???? for NAC users MiddleAgedLady 6:59 PM
Zenpep kitomd21 6:51 PM
Blog Title Blogger Posted
A much needed update!! princessjdc December 18 4:25 PM
little poem loveee12 December 18 4:01 PM
Story yellowsmom December 18 1:19 PM
Hey everyone!! fourkidsmom December 17 6:46 PM
Time Flies Ratatosk December 17 11:09 AM
Accessing my port Part II RitaLSonnenberg December 17 9:25 AM
Weston westonsmom December 16 5:34 PM
PORT ACCESS AND MICRO-GRIPPER NEEDLE? RitaLSonnenberg December 16 8:38 AM
Stress...and Disney! izemmom December 15 11:45 PM
A GIANT LEAP FORWARD? jdmd December 15 6:22 PM

Celebrating the Digital Transition with an itsty b... (00:46)
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What Rose Warrior does every morning. http://fight... (1:47)
Added: 03/11/2008 • Views: 1814
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CD doing his vest therapy for cystic fibrosis, whe... (02:59)
Added: 06/27/2007 • Views: 773
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What is Cystic Fibrosis?
An inherited life-threatening disease involving a genetic mutation that disrupts the cystic fibrosis transmembrane regulator (CFTR) protein, resulting in poorly hydrated, thickened mucous secretions in the lungs.
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acf says: Hello I am new to this!
lakegirl1915 says: Don't ask for a better life, ask to be a stronger person... because no matter how good it is things can ALWAYS go wrong...
lakegirl1915 says: LonniesMom im so sorry for your lose, i know you will miss him but he is better off with the Lord. i hope things get better <3
Aspiemom says: LonniesMom, I am so sorry for your loss. Did he ever post on here? If so, what was his user name?
2005CFmom says: My condolences to you, LonniesMom. We have lost too many great people very recently. RIP
ulleanniber says: hello trentparrishracing ... where u from ?? im 21 .. ur age ;-) u are welcome here
LonniesMom says: lonniesMom, our beautiful 40 year old son was taken home to be with his Lord and Savour on Dec. 2. We celebrated his life today. The battle is over
trentparrishracing43 says: hey everyone i'm new to this but i'm 20 and i found out i had cf when i was 4 yrs old
Godforged says: anyone from dfw?
TommyBridget says: Any Husbands out there with wives that have CF?
babymilesjr says: i am new too this my 2 monthold son has cf and now me and my husbad are in the dark and heartbroken he was born at 32 weeks and now this
lakegirl1915 says: this soo sucks i hate missing school for ivs. i better be able to go to practice today
redheadedmommy says: i can post replys but i cant post a new topic ..whats up with that?
BabyGirl27 says: hello everyone!(:
ulleanniber says: ........ mhh yes ^^
Cherylwithone says: Things we learn about our teenagers
Cherylwithone says: Hello Mel.
JazzysMom says: HELLO MY CF FAMILY!!
JazzysMom says: Cheryl......this is funny with your daughter having to get another screen name LOL!
applegirl says: Hi mom i forgot my other screen name so i created another one
Cherylwithone says: applegirl...where in MA? my daughter is also 16 and we are in MA. She pops up on this site.
applegirl says: new to site hoined yesterday. 16 w/CF from MA
grantsmom says: grants got his incourage vest today
mum2rebecca says: new to the site just wandering anyone want to give me any pointers to what i can do plzzzzzzzzzzzzzzzz
sexxiej says: im really hyper...that must mean im feeliin better lol
sexxiej says: im feeling soo much better im totally ready to go home..but i dont think i've been in here long enough though
sexxiej says: and i know its caused from taking tobramycin nebulizer
sexxiej says: no i havent told them i didnt think anything of it..but yes it is difficult to eat at the moment
JazzysMom says: Sexxiej.....did you tell the doctors about your mouth? That is probably thrush & needs to be treated. It will be difficult to eat & drink!
sexxiej says: oh and im from amarillo tx
sexxiej says: heyy im 22 (ulleanniber) :-)
ulleanniber says: hi i am 21 .. your age :-) where u from? (sexxiej)
sexxiej says: ugh my meds are putting sores in my mouth :-(...it burns when i eat things
sexxiej says: wow i can honestly say that i have never had to stay in a hospital that long...maybe a month but that was because i had a brain tumor removed
mustang347gt says: yup 3 weeks in hosp it normal for cfers. i jus got out and i was in there for 2 months
sexxiej says: thank you sweetwhite32...my doc just came in and said i have atleast 2 more wks left in here..today is a week that i've been hospitalized
sweetwhite32 says: sexxiej-- I was in a nursing home(or rehab ) and i was the youngest there...so i know how awkwards that feels.get better so you go home...
sexxiej says: i have insomnia real bad and i cant sleep anyone in here?
sexxiej says: im 22
itsjustdes says: anyone here?
ulleanniber says: why .. how old are u?? (sexxiej)
sexxiej says: in a nursing facility and im the youngest one in here ugh... :-(
JazzysMom says: Hello My Virtual Friends & Family!
wood3179 says: Anyone in the Odessa, TX area this Friday and Saturday, The Jackolopes Hockey team iss havinga CF night. Help raise money and Awareness
desirabsolu09 says: Exactly. He raised over 10 million for CF, yet somehow, he isn't even mentioned on any cf website I've found so far. That's not right.
donnamariefroncillo says: I am 43 and looking to hear from other adults diagnosed late. This is all new to me since May of this year.
ulleanniber says: he could write with me ..
Lauriew says: i have a friend who needs emotional support from other cf teens
peanutsowers8996 says: ergh
hockeykid says: I am getting out of Club Med tomorrow!!!
rpcvchina says: If you haven't heard, Gregory Lemarchal is definately worth looking up. Great singer. Lots of stuff on youtube.From him more than 10 mil rasied for CF
MOME2RT says: reeces vit d levels were awesome! in the 75%!!!
ulleanniber says: http://www.myspace.com/thelavence
desirabsolu09 says: Yes, he was. Beautiful, like an angel. Anywho, I'm writing a story involving a family where the son has CF .
peanutsowers8996 says: HATE THE FLU!
peanutsowers8996 says: I HATE THIS FLU IT SUCKS LIKE CRAZY!
ulleanniber says: yeah greogry ... soo a great fighter .. he wins the talentshow on france ... im was very sad of his dead ... he was very cute ;-)
ulleanniber says: where do u come from ?? at all ...
desirabsolu09 says: Have any of you heard of Gregory Lemarchal, the amazing French singer and inspiration who died only two years ago from CF? :0
peanutsowers8996 says: omg this sucks so much. im freakin' cold and out of school alllllll week
krisgabes says: IV comes out tomorrow!! hooray!! i'm sorry ur sick peanut!
peanutsowers8996 says: sickk with the flu):
vladober says: I joined the MRSA club! Bumer...
JazzysMom says: Krisgabes....you are funny! ENJOY~
krisgabes says: oh wow! i'm excited for wall posting! welcome to a new obsession lol
BabyGirl27 says: my birthday is 2morrow going on 13!
JazzysMom says: DONT FORGET HALLOWEEN CHAT....TONITE, SUNDAY, OCT. 25 @ 8PM EASTERN TIME
minichic says: i havent been on here in a long time and they have updated alot how do i post forums please help me (= thanks
peanutsowers8996 says: heeeeeeeeeeeeeeey
JazzysMom says: I wont be in chat again tonite (10/18/09)
BabyGirl27 says: GOOD MORNING WORLD:)
BabyGirl27 says: getting about time to do treatments! caughing alot!
BabyGirl27 says: hello everyong i went to the doctor 2day and just found out about this website! so im new here not so sure how everything work lol! I got my Flu Shot!
BabyGirl27 says: good luck SunnySideUp! hope it goes good!
SunnySideUp says: HEY! I'm 15 years old. Im going for a Dr. appointment tomorrow, wish me luck!
adamsants says: Adam goes for pfts tomorrow pray that they have gone up. So we can come home
sidekickj says: Sorry, nvrmd
sidekickj says: Tried to start a chat but nothing happened...just went away after I posted topic. ????
sidekickj says: 24 w/ cf-Have nvr been one to talk to anybody about this til now. Awesome to not feel alone!
peanutsowers8996 says: Welcome to new peoples!

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In The News
Research Project Yields Better Understanding Of The Defective Protein That Causes Cystic Fibrosis (redOrbit)
Investigators report new findings about its special relationship with pH levels inside cellsA team of researchers studying the protein that, when defective or absent, causes cystic fibrosis (CF) has made an important discovery about how that protein is normally controlled and under what circumstances it might go awry."Understanding the regulation of salt transport in normal cells is critical for ...

Better understanding of the defective protein that causes cystic fibrosis (Science Daily)
Scientists studying the protein that, when defective or absent, causes cystic fibrosis has made an important discovery about how that protein is normally controlled and under what circumstances it might go awry.

Improved Understanding Of The Defective Protein That Causes Cystic Fibrosis (Medical News Today)
A team of researchers studying the protein that, when defective or absent, causes cystic fibrosis (CF) has made an important discovery about how that protein is normally controlled and under what circumstances it might go awry. "Understanding the regulation of salt transport in normal cells is critical for the development of new therapies for diseases, like CF, that disrupt salt movements across ...

Research project yields better understanding of the defective protein that causes cystic fibrosis (PhysOrg)
A team of researchers studying the protein that, when defective or absent, causes cystic fibrosis (CF) has made an important discovery about how that protein is normally controlled and under what circumstances it might go awry.

Carrier screening associated with decrease in incidence of cystic fibrosis (Science Daily)
An increase in the number of screened carriers for cystic fibrosis (CF) was associated with a decrease in the number of children born with CF in northeast Italy, according to a new study.

Research project yields better understanding of the defective protein that causes cystic fibrosis (EurekAlert!)
( American Society for Biochemistry and Molecular Biology ) A team of researchers studying the protein that, when defective or absent, causes cystic fibrosis has made an important discovery about how that protein is normally controlled and under what circumstances it might go awry.

Wider Adult Screening May Mean Fewer Children With Cystic Fibrosis (MedicineNet.com)
Title: Wider Adult Screening May Mean Fewer Children With Cystic Fibrosis Category: Health News Created: 12/15/2009 4:10:00 PM Last Editorial Review: 12/16/2009

Wider Adult Screening May Mean Fewer Children With Cystic Fibrosis (HealthDay via Yahoo! News)
TUESDAY, Dec. 14 (HealthDay News) -- The number of children born with cystic fibrosis decreases when screening for potential parents who might be CF mutation carriers increases, a new study finds.

Carrier screening associated with decrease in incidence of cystic fibrosis (PhysOrg)
An increase in the number of screened carriers for cystic fibrosis (CF) was associated with a decrease in the number of children born with CF in northeast Italy, according to a study in the December 16 issue of JAMA.

Association Between Carrier Screening and Incidence of Cystic Fibrosis [Original Contribution] (Journal of the American Medical Association)
Context� A downward trend in cystic fibrosis (CF) birth incidence has been reported in some areas. Objective� To evaluate the association between carrier screening and CF birth incidence. Design, Setting, and Participants� In northeastern Italy, CF birth incidence is monitored by means of a long-standing neonatal screening program. In the same area, 2 sections using different carrier detection ...

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