Always consult your medical specialist or CF Center when determining which course of cystic fibrosis treatment is best for you or your loved ones.
Disclaimer © 2008 CysticFibrosis.com.

CysticFibrosis.com Daily

Post Title Member Posted
little man's face on all htread entries sarabeth87 5:50 PM
What do you do when it's almost over? greatbay 5:46 PM
G.I issues with CF Cherylwithone 5:43 PM
Anyone know a GOOD doctor? BaylorCrew07 5:13 PM
OH MY! caraweger 5:05 PM
echogenic bowel on 22 week ultrasound Ratatosk 4:59 PM
Compassionate Drug Releases izemmom 4:52 PM
Disney Trip izemmom 4:45 PM
Many questions--1 post crickit715 4:44 PM
Working full time with CF BaylorCrew07 3:57 PM
Blog Title Blogger Posted
Clinic Visit/Tiger II pnhuffman 5:36 PM
If I Never Had CF laulau555 February 7 12:42 PM
Transplant Consult tarheel February 5 7:47 PM
Tired all the time.... RitaSonnenberg February 5 3:25 PM
getting addmited AGAIN !!! cfprincess09 February 5 6:46 AM
How??? RebekahsMom February 5 12:14 AM
Up Early... MCGrad2006 February 4 6:51 AM
The Beginning of the End? jdmd February 3 5:23 PM
Clinical Trial for Inhaled Ciprofloxacin - Phase 2 CFRI February 2 12:38 PM
Happy Lungiversary Garran! vmhoward February 2 10:32 AM

pegson heads off to pulmonary rehab (04:38)
Added: 08/20/2009 • Views: 988
Discuss this video on CFTube

Emily Haager's CF Story (3:30)
Added: 03/24/2008 • Views: 4004
Discuss this video on CFTube

(08:14)
Added: 09/14/2007 • Views: 1523
Discuss this video on CFTube
What is Cystic Fibrosis?
An inherited life-threatening disease involving a genetic mutation that disrupts the cystic fibrosis transmembrane regulator (CFTR) protein, resulting in poorly hydrated, thickened mucous secretions in the lungs.
Why Join CysticFibrosis.com
Receive our monthly e-newsletter
Search over 30,000 CF topics
Review over 325,000 threads of CF information
Participate in all CF discussions
Upload your videos, artwork and photos
Listen to and interact with the CF professionals
Update your profile and aid in market research and awareness
CysticFibrosis.com Wall      
andrev77 says: hey everyone, hope you are all having a good day...going to the docs on thurs and i'm sure he ain't gonna be happy.
andrev77 says: cffighter...my facebook name is andrevafiadis, or apvafia@aol.com. talk soon.
tahliyah says: hi ia there any mums on that want to have a chat?
peanutsowers8996 says: snoww STORM! aaaah a foot of snow!
tahliyah says: hi is anyone currently on the site im trying to wk out it but im confused how do we start talking to other ppl?
tahliyah says: is anyone there
tahliyah says: hi i am 21 looing for someone to chat with my son has cf and i would love somone else to talk 2
cffighterwithfaith says: Hey andrev77, how do I find you on Facbook?
andrev77 says: Hi Beth(cffighterwithfaith), I got your message and wrote one back but it said you weren't accepting PMs. I have AOL or Facebook if that works...
sexxiej says: i have heartburn soo badd i just want to cry
lakegirl1915 says: omg so happy its snowing 13 hours and like 20 minutes till my b~day.... omg sooo happy
andrev77 says: Hey i'm Andre, 32 with CF. I don't know anyone with CF and would like some new friends to chat with. Send a message, have a great day!!
cffighterwithfaith says: Hi I'm Beth and I'm 30. I have cf. I would like to make friends. Send me a message.Thanks!
carly23 says: Hi im Carly im 23 and have cf im new to this and am looking for ppl to make friends :) msg me ! thanks x
ashleynicole says: Hi my name is Ashley and I have had CF for 23 years. I would like to make some friends or at least talk to someone
Emilysmom2004 says: emily had a rough night so no school today to tired.. We are watching cartoon's..
peanutsowers8996 says: DONATE TO HAITI! TEXT ''HAITI'' TO 90999! PEOPLES LIVES DEPEND ON IT!
peanutsowers8996 says: im in a gooood mood(:
lakegirl1915 says: I HATE PEP. AND BREATHING TREATMENTS!!!!!GRRRRR
peanutsowers8996 says: only two more days of tobi!(: no more waking up at 5:30!
dnakita says: Barbsy.. I read your story on beeing diagnosed at 60 and your history. Was amazed to read it sounded just like myself.
dnakita says: Hi, I'm 58 and was diagnosed with CF last year. I've been treated for asthma and bronciectisis for many years. Plus I've had two bile duct surgeries.
Wildcat says: Wildcat: started taking Zenpep last month. Way better than new creon!!! I take less pills and can eat anything now. Going out to eat Mexican!!!
JORDYSMOM says: Hi Emilysmom! Welcome. Everyone's "normal" is different. Glad Emily has such great big brothers. :)
Emilysmom2004 says: Emily has 3 older brother's who help every day with her treatment's! Emily goes to school and try's to live a normal day what ever normal is..
Emilysmom2004 says: I am new to this. My daughter Emily has cf she is 5 years old and we found out she had it when she was 10 mths old. It has been a rough battle.
lakegirl1915 says: thanks thats nice and ill be 15 in 17 days. and best wishes to you to ulleanniber
ulleanniber says: hi lake girls .. heelo .. we could write ... im 21 and cf .. what about u? best wishes at all
lakegirl1915 says: ok well i dont know how to do the forum thing. im new on here and just want friends with cf. can anybody help :)
lakegirl1915 says: can anybody tell me how to take a super cute video from here and put it on my facebook please. im to impatient to keep looking
barbsy says: I am 60 years old. After years of being treated for asthma & bronchiectasis and after many doctors & tests, I was diagnosed with AdultCF about a year
lakegirl1915 says: dont worry acf so am i
sweetwhite32 says: crystalina0814 i know alot about joint pain,i have RA,I am sorry your having a bad bout of joint pain today.i hope you can feel relief soon!
crystalina0814 says: Ouch, Ouch. So much joint pain. The normal "hot" bath I would take to help is a no go with these IV's. Grr.
mom2my3kids says: I am having a hard day without Baby Xander...Bless his lil CF heart...and all of yours too!
peanutsowers8996 says: back on tobi. :P
srancher says: my christmas kinda suxed im in tha hospital, but thank God i have only 3 more days left, i think..
sexxiej says: this christmas has been the best ever im feelin so well and i havent felt this good in a while
pnhuffman says: MERRY CHRISTMAS EVERYONE!
Cherylwithone says: "MERRY CHRISTMAS" to all. Have a safe and healty holiday. Remember the ones we have lost in our thoughts and prayers.
peanutsowers8996 says: back online! and got a LOT of updates
ctalbott0609 says: Lol the site hates me tonight! --Hope to see everyone in chat tonight!!
ctalbott0609 says: @Rhonda There is no scientific proof that Climate effects CF. It basically comes down to your own personal comfort level.
ctalbott0609 says: @Rhonda there is no scientific proof that climate effects CF, it basically just comes down to your own personal level of comfort.
ctalbott0609 says: @Rhonda there is no scientific proof that climate effects CF, it basically just comes down to your own personal level of comfort.
BelEAche says: Woo Hoo ! 2 hr delay tomorrow.. Mama is happy :)
rhonda21 says: is there proof that youcfers cannot tolerate moist climate? and what do docs do about it?
acf says: Hello I am new to this!
lakegirl1915 says: Don't ask for a better life, ask to be a stronger person... because no matter how good it is things can ALWAYS go wrong...
lakegirl1915 says: LonniesMom im so sorry for your lose, i know you will miss him but he is better off with the Lord. i hope things get better <3
Aspiemom says: LonniesMom, I am so sorry for your loss. Did he ever post on here? If so, what was his user name?
2005CFmom says: My condolences to you, LonniesMom. We have lost too many great people very recently. RIP
ulleanniber says: hello trentparrishracing ... where u from ?? im 21 .. ur age ;-) u are welcome here
LonniesMom says: lonniesMom, our beautiful 40 year old son was taken home to be with his Lord and Savour on Dec. 2. We celebrated his life today. The battle is over
trentparrishracing43 says: hey everyone i'm new to this but i'm 20 and i found out i had cf when i was 4 yrs old
Godforged says: anyone from dfw?
TommyBridget says: Any Husbands out there with wives that have CF?
babymilesjr says: i am new too this my 2 monthold son has cf and now me and my husbad are in the dark and heartbroken he was born at 32 weeks and now this
lakegirl1915 says: this soo sucks i hate missing school for ivs. i better be able to go to practice today
redheadedmommy says: i can post replys but i cant post a new topic ..whats up with that?
BabyGirl27 says: hello everyone!(:
ulleanniber says: ........ mhh yes ^^
Cherylwithone says: Things we learn about our teenagers
Cherylwithone says: Hello Mel.
JazzysMom says: HELLO MY CF FAMILY!!
JazzysMom says: Cheryl......this is funny with your daughter having to get another screen name LOL!
applegirl says: Hi mom i forgot my other screen name so i created another one
Cherylwithone says: applegirl...where in MA? my daughter is also 16 and we are in MA. She pops up on this site.
applegirl says: new to site hoined yesterday. 16 w/CF from MA
grantsmom says: grants got his incourage vest today
mum2rebecca says: new to the site just wandering anyone want to give me any pointers to what i can do plzzzzzzzzzzzzzzzz
sexxiej says: im really hyper...that must mean im feeliin better lol
sexxiej says: im feeling soo much better im totally ready to go home..but i dont think i've been in here long enough though
sexxiej says: and i know its caused from taking tobramycin nebulizer
sexxiej says: no i havent told them i didnt think anything of it..but yes it is difficult to eat at the moment
JazzysMom says: Sexxiej.....did you tell the doctors about your mouth? That is probably thrush & needs to be treated. It will be difficult to eat & drink!
sexxiej says: oh and im from amarillo tx
sexxiej says: heyy im 22 (ulleanniber) :-)
ulleanniber says: hi i am 21 .. your age :-) where u from? (sexxiej)
sexxiej says: ugh my meds are putting sores in my mouth :-(...it burns when i eat things

Username:

Password:

Does your doctor actively work with you to optimize your medicine cabinet? (Pick the response that most closely fits your situation.)

Yes. My doctor suggests different drugs that might improve my condition, and closely monitors my dosing and response to new and old meds.

Sometimes. My doctor goes over my meds with me, but I am the one to pursue a discussion of their effectiveness and bring ideas for change.

No. My doctor does not converse with me about my meds aside from listing them, nor take an interest in how I feel my meds are working.

Vote! and view the results

View our previous polls
In The News
Cystic Fibrosis Foundation Receives $521,000 From BJ's Restaurants, Inc., As Part Of Long-Term Commitment To Fight ... (Medical News Today)
As part of a steadfast commitment to finding a cure for cystic fibrosis, BJ's Restaurants, Inc. donated $521,000 to the Cystic Fibrosis Foundation in 2009 for research, care and education programs. BJ's has been involved with the Foundation since 1998 and is one of its largest and most loyal corporate supporters. "We are truly grateful to BJ's restaurants, their team members and their customers ...

Cystic Fibrosis Rockaway Plunge (FOX 5 New York)
The tenth annual Cystic Fibrosis Rockaway Plunge on Saturday was a success - albeit a very cold, wet one.

CREON(R) (pancrelipase) Delayed-Release Capsules Significantly Improves Fat Absorption In Children With Cystic Fibrosis (Medical News Today)
Solvay Pharmaceuticals, Inc. announced that Phase IIIb data published in the January issue of Clinical Therapeutics confirm that CREON� (pancrelipase) Delayed-Release Capsules significantly improves a key measure of fat absorption in children aged 7-11 years who have exocrine pancreatic insufficiency (EPI) due to cystic fibrosis (CF), EPI is a condition resulting from a deficiency in the ...

Esiason and Son vs. Cystic Fibrosis (FOX 5 New York)
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system, causing the body to produce unusually thick and sticky mucus that clogs the lungs and obstructs the pancreas. In the United States, 30,000 children and adults live with cystic fibrosis. With nearly one thousand new cases of cystic fibrosis diagnosed each year, awareness is the key.

Cystic Fibrosis Foundation Receives $521,000 From BJ's Restaurants, Inc., as Part of Long-Term Commitment to Fight ... (redOrbit)
BETHESDA, Md., Feb. 5 /PRNewswire-USNewswire/ -- As part of a steadfast commitment to finding a cure for cystic fibrosis, BJ's Restaurants, Inc. donated $521,000 to the Cystic Fibrosis Foundation in 2009 for research, care and education programs.

Cystic Fibrosis Foundation Receives $521,000 From BJ's Restaurants, Inc., as Part of Long-Term Commitment to Fight ... (PR Newswire via Yahoo! News)
BETHESDA, Md., Feb. 5 /PRNewswire-USNewswire/ -- As part of a steadfast commitment to finding a cure for cystic fibrosis, BJ's Restaurants, Inc. donated $521,000 to the Cystic Fibrosis Foundation in 2009 for research, care and education programs. BJ's has been involved with the Foundation since 1998 and is one of its largest and most loyal corporate supporters.

Walking for Cystic Fibrosis Foundation (Ludington Daily News)
Sandy Forrester has two grandchildren with cystic fibrosis and she has participated in two walks to help raise funds for the Cystic Fibrosis Foundation. She plans to walk in Muskegon May 23, but she would like to start a walk in Mason County.

Benefit for sisters set for Saturday; both are victims of cystic fibrosis (Buffalo Reflex)
Even for sisters, Miranda Fulton, 27, and McKenzie Hicks, 26, the daughters of Valerie and Randy Willis of Long Lane, have a lot in common.

Vertex sees positive data in cystic fibrosis study (AP via Yahoo! News)
Vertex Pharmaceuticals Inc. said Wednesday its experimental cystic fibrosis drug VX-809 met key safety and tolerability goals in a midstage study.

Vertex Sees Positive Data in Cystic Fibrosis Study (ABC News)
Vertex Pharmaceuticals says cystic fibrosis drug meets key goals in midstage study Vertex Pharmaceutical - Cystic fibrosis - Health - Conditions and Diseases - Genetic disorder

|| Submit your donate page, Great Strides, or events ||
Great Strides

No events registered, click here to post your cystic fibrosis great strides.

Events

No events registered, click here to post your cystic fibrosis event.

Partners in Education