Tuesday, May 13, 2008
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What is Cystic Fibrosis? |
| An inherited life-threatening disease involving a genetic mutation that disrupts the cystic fibrosis transmembrane regulator (CFTR) protein, resulting in poorly hydrated, thickened mucous secretions in the lungs. |
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What is CysticFibrosis.com? |
| A leading online resource and support for those affected by cystic fibrosis. We’re 7500 members strong, 104 countries represented, e-Patients, experts, industry leaders, over 200,000 searchable messages and 20,000 CF related topics, over 700 bloggers, 100 CF videos and so much more to support, educate and strengthen hope. |
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- Cystic Fibrosis devastates Lawton family (KSWO Lawton-Wichita Falls)
- May 13, 2008 at 10:27 AM
- Cystic Fibrosis is a devastating disease that strikes young children. �It is a genetic disease with no cure, and it attacks the lungs and digestive system, so that young children are living with a kind of constant pneumonia, struggling just to breathe and eat.� The treatments for CF are extensive, exhausting, and sometimes aggravating. �But with research these children are now living into their ...
- Cystic fibrosis walk is Sunday in Midland Beach (Staten Island Advance)
- May 13, 2008 at 08:40 AM
- STATEN ISLAND, N.Y. -- The Cystic Fibrosis Foundation's annual Great Strides Walk will be held in a new location this year, but with the same mission: To eradicate the disease that afflicts 30,000 adults and children in the United States.
- Cystic fibrosis woman in peak bid (Channel 4)
- May 13, 2008 at 05:14 AM
- A 23-year-old woman with cystic fibrosis is going to set off from the UK to take part in the world's highest marathon. Jodie Symington, from South Shields, will set off on a 12-day hike to Everest Base Camp. She will then start the gruelling 27-mile course.
- Cystic fibrosis walk at Zooz (Niagara Falls Review)
- May 12, 2008 at 03:38 PM
- The annual Taking Strides walk to find a cure for cystic fibrosis will take place at Zooz May 25. Each walker is required to raise $25 in pledges to participate. Great Strides goody bags will be available to the first 350 participants. There will be a free barbecue, bouncy [...]
- VGX Pharmaceuticals Signs Multi-Year Production Agreement with the United Kingdom Cystic Fibrosis Gene Therapy ... (Business Wire via Yahoo! Finance)
- May 12, 2008 at 09:00 AM
- BLUE BELL, Pa.----VGX Pharmaceuticals today announced that the Company has signed a multi-year supply agreement to provide plasmid DNA to support the ongoing toxicology and clinical trials of the United Kingdom Cystic Fibrosis Gene Therapy Consortium comprising over 80 scientists and clinicians in Edinburgh, London and Oxford dedicated to the search for effective gene therapy to the lungs of ...
- Rocking on for cystic fibrosis research (The Philadelphia Inquirer)
- May 11, 2008 at 03:37 AM
- DETROIT - There are days when 26-year-old Emily Schaller can barely breathe because of cystic fibrosis - and playing in smoke-filled bars hasn't helped.
- Cystic fibrosis fundraiser planned at six locations (The Buffalo News)
- May 11, 2008 at 06:51 AM
- Great Strides, the largest cystic fibrosis fundraiser in the country, is coming to Western New York this month.
- Cystic Fibrosis Walk Held In Janesville (WISC-TV Madison)
- May 11, 2008 at 01:08 AM
- JANESVILLE, Wis. -- May is National Cystic Fibrosis Awareness Month, and on Saturday, Rock County residents took great strides toward helping to find a cure.
- Alabama Begins Mandatory Screening of Newborns for Cystic Fibrosis (PR Newswire via Yahoo! News)
- May 13, 2008 at 10:41 AM
- State Joins 40 Others in Screening for Life-Threatening, Genetic Disease
- Events aim to shed light on cystic fibrosis (Stevens Point Journal)
- May 09, 2008 at 04:52 AM
- When Don Soderberg discovered his granddaughter had cystic fibrosis, he knew he had to do something to spread the word about the disease.
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