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Tuesday, May 13, 2008

Cystic Fibrosis Quality of Life Program
This program is specifically designed for people impacted by CF. The program addresses: Stress, Grief, Time Management, Anger, Communication Issues, and the spectrum of Psychological, Social and Spiritual Aspects of living and coping with CF.
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What is Cystic Fibrosis?
An inherited life-threatening disease involving a genetic mutation that disrupts the cystic fibrosis transmembrane regulator (CFTR) protein, resulting in poorly hydrated, thickened mucous secretions in the lungs.
What is CysticFibrosis.com?
A leading online resource and support for those affected by cystic fibrosis. We’re 7500 members strong, 104 countries represented, e-Patients, experts, industry leaders, over 200,000 searchable messages and 20,000 CF related topics, over 700 bloggers, 100 CF videos and so much more to support, educate and strengthen hope.

News Feed


Cystic Fibrosis devastates Lawton family (KSWO Lawton-Wichita Falls)
Cystic Fibrosis is a devastating disease that strikes young children. �It is a genetic disease with no cure, and it attacks the lungs and digestive system, so that young children are living with a kind of constant pneumonia, struggling just to breathe and eat.� The treatments for CF are extensive, exhausting, and sometimes aggravating. �But with research these children are now living into their ...
Cystic fibrosis walk is Sunday in Midland Beach (Staten Island Advance)
STATEN ISLAND, N.Y. -- The Cystic Fibrosis Foundation's annual Great Strides Walk will be held in a new location this year, but with the same mission: To eradicate the disease that afflicts 30,000 adults and children in the United States.
Cystic fibrosis woman in peak bid (Channel 4)
A 23-year-old woman with cystic fibrosis is going to set off from the UK to take part in the world's highest marathon. Jodie Symington, from South Shields, will set off on a 12-day hike to Everest Base Camp. She will then start the gruelling 27-mile course.
Cystic fibrosis walk at Zooz (Niagara Falls Review)
The annual Taking Strides walk to find a cure for cystic fibrosis will take place at Zooz May 25. Each walker is required to raise $25 in pledges to participate. Great Strides goody bags will be available to the first 350 participants. There will be a free barbecue, bouncy [...]
VGX Pharmaceuticals Signs Multi-Year Production Agreement with the United Kingdom Cystic Fibrosis Gene Therapy ... (Business Wire via Yahoo! Finance)
BLUE BELL, Pa.----VGX Pharmaceuticals today announced that the Company has signed a multi-year supply agreement to provide plasmid DNA to support the ongoing toxicology and clinical trials of the United Kingdom Cystic Fibrosis Gene Therapy Consortium comprising over 80 scientists and clinicians in Edinburgh, London and Oxford dedicated to the search for effective gene therapy to the lungs of ...
Rocking on for cystic fibrosis research (The Philadelphia Inquirer)
DETROIT - There are days when 26-year-old Emily Schaller can barely breathe because of cystic fibrosis - and playing in smoke-filled bars hasn't helped.
Cystic fibrosis fundraiser planned at six locations (The Buffalo News)
Great Strides, the largest cystic fibrosis fundraiser in the country, is coming to Western New York this month.
Cystic Fibrosis Walk Held In Janesville (WISC-TV Madison)
JANESVILLE, Wis. -- May is National Cystic Fibrosis Awareness Month, and on Saturday, Rock County residents took great strides toward helping to find a cure.
Alabama Begins Mandatory Screening of Newborns for Cystic Fibrosis (PR Newswire via Yahoo! News)
State Joins 40 Others in Screening for Life-Threatening, Genetic Disease
Events aim to shed light on cystic fibrosis (Stevens Point Journal)
When Don Soderberg discovered his granddaughter had cystic fibrosis, he knew he had to do something to spread the word about the disease.
The Forum Categories display our most popular CF health and discussion topics. Opportunities to join in discussions are created for the CF Patient and Caregiver and now we introduce our Relevant Sponsors.  For further topic category information, Click here >
Post Title Member Posted
Pray for Cory fourkidsmom 1:30
"Normal" sweat test Juliet 1:30
The Order of Biz ERINSBIZ 1:23
Asthma and CF BelEAche 1:07
PLEASE check the prayer reqests ERINSBIZ 1:02

Blog Title Blogger Posted
he is himself again!!! sweetwhite32 1:31
Swimming Lessons bonniebaby 11:22
U of Phoenix cdunbar 10:52
update from the doctor bobbiex3 10:09
pays break paysmom 1:07

Recipe name Category Member
Cheesecake Squares American Tiffany
Auntie Lindas Sour Cream Chicken Enchiladas Mexican Ratatosk aka Liza
After School Puddin' American Karen

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