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What is CF?

It is a genetic disorder that you are born with.

Your body needs water and salt to work and grow. Water and salt move through tiny cells in your body. In people with CF, water and salt can not move through the tiny cells easily which makes it dry. The body then produces thick, "icky, sticky stuff" called mucus. mucus forms in the:

Lungs which help you breathe.

Pancreas which help you digest your food.

Mucus sticks in your lungs and throat and makes you cough. Mucus is also a friendly home for germs and bacteria which can make you sick.

Where does CF come from and how did I get it?
CF is inherited. We all get 2 CF genes from our parents before we are born. We get 1 gene from each parent. We either get a Normal gene - which does not have CF, or we get an Abnormal gene - which has CF. If we get 2 Abnormal genes then we will have CF. Our Parents can NOT control which 2 genes we will get.

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In The News
Bayer lung infection drug gets orphan status (AP via Yahoo! Finance)
March 11, 2010 at 10:29 AM
 Bayer HealthCare Pharmaceuticals said Thursday that it received orphan status for an inhaled drug intended to treat lung infections in cystic fibrosis patients.

Dedham event making strides against disease (Boston Globe)
March 11, 2010 at 12:33 AM
 Although it�s still more than two months away, supporters are already on alert that it�s time to start limbering up for the annual Dedham Great Strides Walk for Cystic Fibrosis.

FDA Grants Bayer HealthCare Pharmaceuticals Orphan Drug Designation for Investigational Ciprofloxacin Dry Powder ... (PR Newswire via Yahoo! Finance)
March 11, 2010 at 09:00 AM
 Bayer HealthCare Pharmaceuticals announced today that an orphan drug designation has been granted by the U.S. Food and Drug Administration for ciprofloxacin dry powder inhaler for management of pulmonary infection due to Pseudomonas aeruginosa in cystic fibrosis patients.

Fundraiser nets over $14,000 for PACFI (The Milton Standard-Journal)
March 11, 2010 at 09:33 AM
 MIFFLINBURG � Mike & Dot�s II was packed wall-to-wall Saturday with community members who came out to taste chili concoctions, bid on auction items and raise funds for cystic fibrosis.

How an NFL QB funds this student's education (Seattle University Spectator)
March 10, 2010 at 10:49 PM
 By: Kelton Sears Living, breathing and succeeding, Jonathon Brown fights cystic fibrosis Jonathon Brown, originally from Memphis, Tenn., was born with the genetic disease cystic fibrosis. One of the most common life-threatening genetic diseases in the United States, cystic fibrosis causes thick, sticky mucus to collect in the lungs and the pa...

Jaffer pleads to reduced charge, fined (Orangeville Citizen)
March 10, 2010 at 08:47 PM
 Instead of facing trial for impaired driving and cocaine possession, a former MP and husband of a federal cabinet minister has made a $500 donation to Cystic Fibrosis and paid a $500 fine for careless driving.

WDAM.com Laurel-Hattiesburg, MS The Pinebelt's Choice For News, Sports and Weather | USM fraternity takes on cystic ... (WDAM-TV Hattiesburg)
March 06, 2010 at 05:51 PM
 HATTIESBURG, MS (WDAM) - Nearly 200 people gathered on the Southern Miss campus Saturday morning to support the fight against cystic fibrosis. They took part in the 20th annual, "Great Strides Walk." The walk is a fundraiser for the state chapter of the Cystic Fibrosis Foundation.

Is Prenatal Screening For Rare Diseases Like Spinal Muscular Atrophy Too Costly? (Medical News Today)
March 09, 2010 at 08:43 AM
 Spinal Muscular Atrophy (SMA) is one of many serious disorders for which prenatal testing is available. SMA affects approximately 1 in 10,000 live births and is the leading genetic cause of infant mortality and the second most common autosomal recessive disorder, after cystic fibrosis. Although the American College of Medical Genetics recommends carrier testing for all couples, the American ...

Victim bound 'so tight, he died' (News 24 South Africa)
March 09, 2010 at 01:38 PM
 The duct tape used to tie up cystic fibrosis sufferer, Mark Truter, was so tightly wound around his face that it would have smothered a healthy person, the KwaZulu-Natal High Court has heard.

New article sheds light on the costs and benefits of screening for SMA (News-Medical-Net)
March 09, 2010 at 07:27 AM
 Spinal Muscular Atrophy is one of many serious disorders for which prenatal testing is available. SMA affects approximately 1 in 10,000 live births and is the leading genetic cause of infant mortality and the second most common autosomal recessive disorder, after cystic fibrosis. Although the American College of Medical Genetics recommends carrier testing for all couples, the American College of ...