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What is CF?

It is a genetic disorder that you are born with.

Your body needs water and salt to work and grow. Water and salt move through tiny cells in your body. In people with CF, water and salt can not move through the tiny cells easily which makes it dry. The body then produces thick, "icky, sticky stuff" called mucus. mucus forms in the:

Lungs which help you breathe.

Pancreas which help you digest your food.

Mucus sticks in your lungs and throat and makes you cough. Mucus is also a friendly home for germs and bacteria which can make you sick.

Where does CF come from and how did I get it?
CF is inherited. We all get 2 CF genes from our parents before we are born. We get 1 gene from each parent. We either get a Normal gene - which does not have CF, or we get an Abnormal gene - which has CF. If we get 2 Abnormal genes then we will have CF. Our Parents can NOT control which 2 genes we will get.

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In The News
New drugs for cystic fibrosis bring hope
July 29, 2010 at 07:37 PM
 Emily Schaller likes to travel as part of the cystic-fibrosis advocacy she does, but the daily regimen she uses to manage her disease weighs her down.

Pair plans to bike to South Haven to benefit cystic fibrosis research
July 28, 2010 at 02:12 PM
 What began as kind of a boring summer has been turned into something positive for a pair of Lenawee County residents. Ellie Jacques and Matt Roberts are doing a fundraiser for cystic fibrosis research by taking a 150-mile bike ride from Clinton to South Haven and back starting Aug. 8.

Shoppers get steamy for cystic fibrosis
July 27, 2010 at 01:22 PM
 Between the stuffy building and the well-dress crowd, the Sale Soir�e Thursday night was one hot party. The event was the brainchild of Tara Mills in an effort to support the Cystic Fibrosis Foundation. by Laura Turner Between the stuffy building and the well-dress crowd, the Sale Soir�e Thursday night was one hot party. The event was the brainchild of Tara Mills in an effort to support the ...

CPF announces nationwide advertising campaign to increase awareness about PF
July 30, 2010 at 05:51 AM
 The Coalition for Pulmonary Fibrosis announced today a nationwide advertising campaign to spread the word about Pulmonary Fibrosis is underway in an untraditional setting on the nation's interstates. Together, a billboard ad and truck ads are part of a nationwide campaign to raise eyebrows and awareness of the deadly lung disease.

Woman texted pictures of herself dying
July 30, 2010 at 01:29 PM
 DOCTORS told�Jo Dowling meningitis rash was just a "minor infection" as�her life ebbed away.

Name change reaches to past
July 27, 2010 at 06:28 PM
 Years ago the Canadian Cystic Fibrosis Foundation chapter in Powell River held a fundraising Dream Auction every April. After many successful years the auction morphed into the Brad Bombardir Golf Classic and, at Bombardirs request, proceeds went to cystic fibrosis and Powell River Kings Hockey Club.

Press Release
July 29, 2010 at 04:33 AM
 Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) today provided an update on recent progress in its development programs in hepatitis C virus (HCV) infection, cystic fibrosis (CF) and other diseases and reported consolidated financial results for the quarter ended June 30, 2010.

Pool center's July 31 CF fundraiser features dunking booth
July 28, 2010 at 08:27 AM
 Sweetwater Pool & Spa Center will host a carnival to benefit cystic fibrosis patients at the store, 6619 Baltimore National Pike, July 31, from 8 a.m. to 5 p.m. Admission is free. Traditional carnival activities such as ring toss and bowling will be available for 25 cents each. Snow...

Group gathers to honor friend on her birthday
July 29, 2010 at 12:25 PM
 A small group of friends and coworkers gathered Wednesday at the Wenatchee Valley Medical Center parking lot to remember Jessica Markie, who died this past January of cystic fibrosis. Markie, who would have turned 31 on Wednesday, worked at the Medical Center.

Saline student advocates for cystic fibrosis patients
July 25, 2010 at 10:16 AM
 Neil Flavin knows the impact cystic fibrosis has on families, and he's getting the word out in a big way.