Who are we & why join us?

We are patients and families from all over the world, sharing our experiences with CF and gaining power over our disease and our futures. We are joined together to grow our knowledge and reach amazing goals. Please join our community and our movement--together we are building knowledge and reaching for a cure.

• Post comments in real-time to forums, blogs & chats.
• Ask questions of medical experts, view featured videos, and learn about medication and equipment.
• Upload your photos, videos and artwork.
• Participate in paid market research.
• Learn about actively recruiting clinical trials.
• Receive our eNewsletter.

Our History

CysticFibrosis.com was founded in 1996 at the dawn of the Internet and the rise of the e-patient-the electronic or empowered patient. Today, we are exchanging information in comprehensive and innovative ways: forums, chats, videos, newsletters, polls and blogs. These opportunities for communication are particularly meaningful because CF patients are increasingly kept apart to avoid bacterial transfer.

Right Now

CF patients, their families and caregivers use CysticFibrosis.com to connect with others sharing similar experiences: to seek hope, to guide each other through new experiences, and to comfort each other in times of grief.

Our members learn about clinical trials and new research. They compare treatment regimens, and increase compliance and proper use of medical equipment. They gain perspective and receive encouragement on how to optimize their long-term pulmonary and digestive function.

The Future

The knowledge shared and gained on CysticFibrosis.com percolates through our members, through CF centers and through research groups across the world. We believe that our community and our movement not only fuel the search for a cure for CF-we are transforming that search and revolutionizing the traditional flow of information.