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Topic Title: swine flu shot question Topic Summary: Created On: 09/15/2009 12:24 PM Status: Post and Reply |
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09/15/2009 12:24 PM
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i know there have been multiple topics on this so forgive me for starting a new one. at my doctor's appt last week my doctor told me i would have to get 3 shots for the flu this year. i didn't vocalize to her at the time that i do not want the swine flu shot. i know there was a post with a poll and i went back and looked at it and it seems dead even on whether people will or will not or are undecided. my question is if your doctor recommends to get it are you going to? i'm am going to refuse the shot next time i go. i have my own reasoning. and i have been exposed to it already. again sorry guys for a new post on it.
------------------------- Candice 23 w/cf; delta F508 and G551D; 
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09/15/2009 12:33 PM
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We are planning to get both the seasonal flu and H1N1 shots.
Originally we were told there would be 3 shots -- there was talk not only of there possibly being a need for 2 H1N1 shots, which is supposedly not necessarily the case now --- but also of getting a seasonal flu shot as early as possible and then getting another on in January/February to carry people thru the flu season, which usually goes to April... Of course at the time I had that conversation with the clinic the intent was to have the H1N1 vaccine combined with the seasonal flu one, which is now not the case. So this week we're all getting our regular flu shots. Supposedly in October the H1N1 will be available. And in November/December see what DS' doctor says at his clinic appointment regarding further vaccination. ------------------------- Liza mom to kiddo wcf (homozygous delta f508) |
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09/15/2009 02:14 PM
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Reagan went to clinic last week, and I asked her doctor about it. She says no at this point, reguarding it as "experimental". I was on this fence about whether I wanted her to get one or not, but I am comfortable with the doctors decision for now.
------------------------- Kari, mom to Reagan 3 w/CF (394delTT & R1066C)and Wade 6 no CF. |
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09/15/2009 03:32 PM
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Hi Candace,
I have done a lot of research on the swine flu and the shots. It is a very different situation than the 70s. That flu then, actually never really materialized as the epidemic they thought would happen. And it was a different strain. The biggest problem is this swine flu is here NOW, spreading like wildfire and none of us have built up immunity to it -- as opposed to other strains. When I asked my doctor about getting the shots, she said, "What choice do you have? The alternative is much much worse." In someone with a respiratory disease, it can be fatal and fast. She explained that the flu is not what kills people. It is the complication of bacterial pneumonia that follows. My doctor's colleague had a patient last week that seemed to have bad bronchitis. She prescribed an antibiotic, and tested him for swine flu. He got worse immediately and was admitted for IV antibiotics. TWO DAYS later, he was dead. It can get bad that fast. There are already Tamiflu resistant strains and there are other cases where the strain is sensitive to Tamiflu and the patient STILL died (identified in an autopsy; I have the article). Swine Flu is a Type A flu. As you know, shots change yearly in anticipation of strains will be presenting each year. So yes, there may be a slight risk for Guille Barre, but for me, the benefits outweigh the risks by a mile. So I am getting the shots. |
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09/15/2009 04:00 PM
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If this is true about 3 or even 2 flu shots most likly the question should be is it safe to get more than one shot at a time. Last year a month after the flu shot I picked up a cold bug and went into the hospital for a week, Dr.Akin said was the flu shot that weaken my immune system along with cold. So I am going to get one shot at a time so the immune system has time to recover and try to say away from the cold.
john73, 55 years old with c/f. ------------------------- john73 |
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09/15/2009 04:01 PM
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If this is true about 3 or even 2 flu shots most likly the question should be is it safe to get more than one shot at a time. Last year a month after the flu shot I picked up a cold bug and went into the hospital for a week, Dr.Akin said was the flu shot that weaken my immune system along with cold. So I am going to get one shot at a time so the immune system has time to recover and try to say away from the cold.
john73, 55 years old with c/f. ------------------------- john73 Edited: 09/15/2009 at 04:10 PM by john73 |
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09/15/2009 04:32 PM
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I had kidney failure ealier this year due to being over-medicated at the hospital. There is NO way I'm allowing anyone to give me any sort of flu shot(s) this year. I'm not putting any more chemicals in my body that do not have to be there.
Stand behind what you think is right, doctor's don't always know best. 
Kelli |
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09/15/2009 04:37 PM
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When I got my flu shot this afternoon, they handed me a card indicating that I need to wait 3 weeks between getting the two H1N1 shots, so when they printed the cards, the intent was for two h1n1 shots. In any event the H1N1 won't be available here until at least mid-October.
------------------------- Liza mom to kiddo wcf (homozygous delta f508) Edited: 09/17/2009 at 12:21 PM by Ratatosk |
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09/15/2009 05:01 PM
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I'm not sure if I'm getting the shot for the swine flu or not. I have to ask my transplant docs about it.
I will definitely be getting the 'normal' flu shot though. ------------------------- Patti/CF/double lung and liver transplant 1-31-07/total colectomy 6-14-07/diabetes. |
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09/15/2009 05:35 PM
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I was just talking to my doctor about this today. She said as of right now she is getting the H1N1 vaccination and so is her child. She said she has done quite a bit of reading about it and thinks it is not too different from a typical flu vaccine.
At this point, she recommended I go ahead and get the seasonal flu shot right away so as to be able to get the other one when it comes out. Her opinion is that there is more risk for me in not getting the vaccine than in getting it. She did say she is going to do a lot more reading about it before it comes out and will let me know if she runs across anything that changes her mind. I trust her judgment on this, especially since she is planning to get it for herself and her child. ------------------------- 37 w/cf; "And He said unto me, My grace is sufficient for thee; for my strength is made perfect in weakness." (II Cor. 12:9a) Edited: 09/15/2009 at 06:01 PM by Jana |
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09/15/2009 05:48 PM
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I just spoke with my social worker as to what the recommendations will be.
Our clinic will have the swine flu vaccine available just as they will the regular one, but each CFer will be talked to & decided mutually who gets the swine flue. Evidentally many patients are against it..... ------------------------- Jazmine; 11 yrs old; daughter; sister |
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09/15/2009 06:23 PM
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here in australia we have had to struggle through the flu season without no vaccine....so now its getting hotter the prevalence of swine will be getting lower......so im gonna wait a few months and see how many people die, get paralysed, bleed out instantaneously, turn into stone and wait for a new safer vaccine...than get it
------------------------- www.pegsoninthepresent.com |
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09/15/2009 06:59 PM
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I remember back in the 80's during that Swine Flu break out the shots
were given in 2 parts.. IT was stopped after some older folks died after getting the shot. They later thought they passed not from the shot but the method they received the Shot. They had been given the shot with the Air Gun. I am not sure what to do this go around.. I need to talk to my Doc and I plan on talking to another Doc too... ------------------------- Brad, Va, 53 W / Cf& Hypoglycemia Dx for Cf at 8 yrs old... left lung removed in 91 , and a Father of a Healthy Son,,,,,,,,,,,,,,, Glad to Be Here....... Where there is no Hope, There is no life ....... |
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09/15/2009 07:42 PM
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I just spoke with my social worker as to what the recommendations will be. Our clinic will have the swine flu vaccine available just as they will the regular one, but each CFer will be talked to & decided mutually who gets the swine flue. Evidentally many patients are against it..... ****Ears perk up**** I asked Donna & she said they will follow the guidelines .. I guess i will talk to them on oct 8th , but wish it were sooner.. Maybe i will see if my primary dr gets it first .. joni
------------------------- Joni 58 y/o f w c/f Married 20 years, Mother of 4 sons, Mima to Richard (4y/o) & Samuel (born 3/22/10) |
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09/15/2009 08:08 PM
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I used to get a flu shot every year, the first few years after my diagnosis. My son always staunchly refused the flu shot. He felt very strongly about this so I allowed him to refuse (he was a legal minor at the time). He had not needed antibiotics for 3 years prior to a diagnosis in part because I raised him to listen to his body and do what made sense to him even if he couldn't explain why well enough to defend or justify it. I also had a friend (a former RN) whose knowledge of alternative medicine had been extremely helpful to me who was very critical of vaccines. And I belonged to a list that was helpful to me and also strongly condemns vaccines. So, basically all of the people who were actually helping me get well were against vaccines. This eventually swayed me and I stopped getting my annual flu shot. I think I am better off without them.
However, I will note that I have made very drastic lifestyle changes which help protect me from illness. So it's not like I am getting no protection. I am just pursuing a different form of protection. Peace. ------------------------- Michele 44 w/ Atypical CF; mom to 2 sons, 1 w/ Atypical CF Health Gazelle ... Kids Like Mine ... Solano Rail Edited: 09/15/2009 at 08:12 PM by MicheleGazelle |
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09/15/2009 08:13 PM
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you know after i started this thread i called my mom and asked her opinion on the shot. she asked me are you asking if you should get the shot, if so then the answer is no. i was kinda surprised. she has no intention of getting it since she was exposed when aj had the flu and one of the kids in her classroom tested postive for it. so she has been exposed twice. it's interesting to see who is getting it and who isn't.
------------------------- Candice 23 w/cf; delta F508 and G551D;
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09/15/2009 08:26 PM
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Alaska is one of the top 11 states as far as the percent that have been diagnosed with Swine flu. It's been sweeping through the villages here. Of the three deaths in Alaska, two of the deaths were of young women with respiratory/other medical conditions and one was a boy who they decided died due to a secondary bacteria. Although the medical conditions are not named, any one of them sound like they could have had CF. I am going to go with my doctor's advice on this if he tells me to get it.
------------------------- Jeana (33 with CF, CFRD), Mom of two boys Chris born 3/8/05 and Alex born 2/23/09 (by adoption and pregnancy) I can do all things through Christ who strengthens me. (Phillipians 4:13) Edited: 09/15/2009 at 08:27 PM by Jeana |
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09/15/2009 09:47 PM
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My clinic has said that we should get it. Our hospital was one of the "testing" hospitals for the swine flu vaccine. I think if I wasnt pregnant then I might ponder over it more but with being pregnant ontop of the CF I know that my health is already comprimised and in TN we have had a good amount of cases and it does make me nervous.
------------------------- Alisha 28 w/CF and Living Life To The Fullest...... Mom To My Miracle Boy Nicolas Born 1/28/10 
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09/15/2009 10:57 PM
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Emily has a clinic appt tomorrow. I will share what their advice is on this- it's on the top of my list of what to discuss with them. We had a fair number of cases last spring and it's starting to surface in my town already.
She had a ped. appointment last month and had her regular flu shot then so that way when h1n1 was available she would be ready to get it. As they only recommend kids with CF to get the inactivated form of the flu shot (as opposed to FluMist, which is a live vaccine), it doesn't affect the immune system in quite the same way. She's also scheduled to get the pneumococcal vaccine next week, on the recommendation of her CF dr. It's a lot of shots this fall but they will all be spaced out about a month apart by the time it's all done with. When last I spoke to her ped (about 2wk ago), their practice was not going to recommend h1n1 until the ongoing trials on children were completed & the fda had made an official statement about it. Assuming they approve of it, they plan to first offer it to their medically vulnerable children, then the general population of kids in the practice if there is any doubt of sufficient supply. I have heard that h1n1 will be available in a thimerosal-free version, btw. I don't know if all of the batches are that way or only some of them (it was hard for me to tell by how the articles I saw were worded) but at any rate that is what I am going to ask for. Given Emily has a neuro disorder I think I could manage this for her w/o too much trouble even if only some of it is made that way. -------------------------  *** Harriett, mom to Emily, 9- dx'ed on 11/24/08 w/cf (one df508/2nd mutation unknown), Shawn, 13 (one df508; status questionable due to sweat test results (48,54); pursuing further testing) & Timothy, 11 (no cf.)
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09/16/2009 06:13 PM
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After her clinic appt:
Emily's clinic is strongly recommending their patients to get both the seasonal shot and the h1n1 vaccination when it comes out. For now, they are recommending parents to get the seasonal shot- at least until more is known about how much h1n1 will still be available once the higher-risk population is served (children, medically vulnerable people, healthcare workers, etc.) ------------------------- *** Harriett, mom to Emily, 9- dx'ed on 11/24/08 w/cf (one df508/2nd mutation unknown), Shawn, 13 (one df508; status questionable due to sweat test results (48,54); pursuing further testing) & Timothy, 11 (no cf.)
Edited: 09/16/2009 at 06:14 PM by hmw |
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