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Cystic Fibrosis Network

  Members, Share Your CF Related Web Site Here.

To Our CysticFibrosis.com Members:

We encourage all of you who have personal and custom CF-related web sites to please share them with us! Our Member Health Network is designed with you and your knowledge in mind. Help us stay informed and on top of the latest ideas, how-tos, inspirations and all that you encompass. Join today by filling out the form below. We will review your site, and respond within 24 hours.

Together, we EMPOWER!

Sarah K

 

Heather Summerhayes Cariou
http://www.sixtyfiverosesthebook.com

Site created around "Sixtyfive Roses: A Sister's Memoir," a book about one family's love, loss and survival with CF. Book excerpt, news & reviews PLUS inspirational quotes, reference pages to other great books, organizations and websites, as well as stories written by other well-sibs.

Cystic Fibrosis Foundation
www.myspace.com/cffcentralpa

A website developed to create awareness and education of the disease, cystic fibrosis. Also, this website is being used to recruit volunteers to make our events more successful, raising more money and making CF stand for "Cure Found"!!!!

Rock CF
www.letsrockcf.org

Led by Emily Schaller, the Rock CF Foundation is dedicated to increasing the quality of life for people with Cystic Fibrosis. With the help of a core group of volunteers, the Foundation utilizes the arts, entertainment, fashion and fitness to support research initiatives and heighten public awareness in the fight against cystic fibrosis.

I Love Stanley NYC
www.iLOVEstanleyNYC.com

Our son Stanley is the smile of today and hope of tomorrow for CF. His site has been developed to tell the story of how a young boy grows with the challenges of CF, all while being happy, playful and thankful. His site has increased an enormous amount of awareness around his disease in NYC and the CF walk. Check it out- your link is also listed on his site...

Risa’s Site
www.Transplantbuddies.org

TransplantBuddies.org is a daily interactive website where transplant recipients and caregivers share feelings and thoughts about their gift of life.

Jody’s site
www.cfnutrition4life.com

Support and topics include Breast Feeding and Nutrition.

Dedicated to helping families and adults with cystic fibrosis find new ways to look at food and supplements. Explore recipes and ideas for HEALTHY, SUPPORTIVE, HIGH CALORIE meals and snacks.

Also dedicated to providing information, encouragement, and support to families whose children have been diagnosed with cystic fibrosis and who wish to breastfeed their babies.

Julie’s site
www.cysticfibrosismaleinfertility.com

This website is a compilation of information on cystic fibrosis and male infertility treatments, as well as our experiences on our journey to have a biological child.

This site was created with the intention to provide thorough information to those seeking further guidance on male infertility caused by the Cystic Fibrosis (CF) gene. I hope that all will find it useful, whether it be a couple, an individual or a family in their attempts to biologically father a child. -Mark and Julie

Holly T. Bendz
www.6500redroses.com

6500redroses.com is a project of love and hope: the love for my daughter Maggie-Faye who was born with Cystic Fibrosis, and the hope that a cure for Cystic Fibrosis will be found in her lifetime.

Lauren (lightNlife)
understandingcysticfibrosis.blogspot.com

Diagnosed with cystic fibrosis at birth, I was not expected to celebrate my 10th birthday. I am now in my late twenties, married, and working as a professional freelance writer and environmental scientist. God has continued to uphold me as I battle with a number of health issues relating to CF.

I have created this site with the following goals in mind: educate, enable, encourage.

A growing compendium of cystic fibrosis information. Links to articles, descriptions of medical procedures and devices, product reviews, and personal stories.

Ginny (breathin is believin)
www.codydieruf.com

Dedicated to the Dieruf family in honor of Our daughter Cody who died from Cystic Fibrosis at the age of 23 on April 28, 2005. The Cody Dieruf Benefit Foundation was fomed to pay tribute to Cody's legacy and to help finance medical/travel expenses and provide educational and cultural opportunities for our local families in Bozeman, MT.

Amanda (Augustmom0003)
www.fightforethan.com

Personal site started in honor of our son, Ethan, to promote cystic fibrosis awareness and education.

Bob Moriarty
www.team-pj.com

A site dedicated to a young boy's courage, my grandson Patrick John Moriarty jr. (PJ).

Joel Brachbill (Team Joel)
www.teamjoel.com

Team Joel is a network of individuals who have been inspired through Joel's illness to raise awareness of Cystic Fibrosis and drive fundraising efforts with hopes of someday finding a cure for CF.

 
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