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What is Cystic Fibrosis?
Cystic fibrosis (CF) is a life-threatening disease that causes mucus to build up and clog some of the organs in the body, particularly in the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult.
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Introducing our CysticFibrosis.com Member Network!

For years, we have been working with all of you, helping and advising you on how to get your own information and messages “out there.” You’ve been posting and sending messages to others, helping one another to cope, live and breathe. With pleasure and pride, we introduce our first CysticFibrosis.com Member Network!

The CysticFibrosis.com Member Network encompasses the personal websites of those of you in our community who are inviting others to learn and share in your knowledge and information about important topics relating to cystic fibrosis.

We are thrilled to be working with you, networking and creating opportunities for others to share, express and inspire. Please visit our Member Sites:

Risa’s Site:

www.Transplantbuddies.org

TransplantBuddies.org is a daily interactive website where transplant recipients and caregivers share feelings and thoughts about their gift of life.

Jody’s site:

www.cfnutrition4life.com

Dedicated to helping families and adults with cystic fibrosis find new ways to look at food and supplements. Explore recipes and ideas for HEALTHY, SUPPORTIVE, HIGH CALORIE meals and snacks.

Also dedicated to providing information, encouragement, and support to families whose children have been diagnosed with cystic fibrosis and who wish to breastfeed their babies.


Julie’s site:

www.cysticfibrosismaleinfertility.com

This website is a compilation of information on cystic fibrosis and male infertility treatments, as well as our experiences on our journey to have a biological child.

This site was created with the intention to provide thorough information to those seeking further guidance on male infertility caused by the Cystic Fibrosis (CF) gene. I hope that all will find it useful, whether it be a couple, an individual or a family in their attempts to biologically father a child. -Mark and Julie

Holly T. Bendz

www.6500redroses.com

The purpose of this website is to collect 6500 pictures of people holding red roses while raising money for CF research. The pictures not only capture those with CF, but also their friends, family, supporters, neighbors, etc. It is my husband Bobs vision.

 

Is you would like to add your site to our CysticFibrosis.com Member Network, please submit your site and URL to: membernetwork@cysticfibrosis.com.

Join Today!

Sarahk
CysticFibrosis.com

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