Cystic Fibrosis | Newsletter | CysticFibrosis.com

Welcome e-Patients
We dedicate this issue to our dear friends at the CFRI. Through the year, the CFRI has supported CysticFibrosis.com and our efforts to bring you the latest interactive education in CF research.

We're engaged as e-Patients; your real-time conversations, questions and answers, your daily research, blogs, videos and word-of-mouth initiatives generate the "BUZZ" at CysticFibrosis.com.

2008 promises increased CF awareness and education, research, opportunity and hope. As advocates we're moving forward, together.

Blessings this Holiday Season!
Jeanne Barnett, Founder
CysticFibrosis.com

Cystic Fibrosis Research, Inc. (CFRI, www.cfri.org) exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease. CFRI funds research to scientists at major research and medical centers, with the majority of funding awarded to the San Francisco Greater Bay Area hospitals and universities. Since 1975, CFRI has awarded $7.8 million dollars in CF research grants. CFRI hosts an annual CF Conference where physicians, scientists, medical care providers, psychologists, adults with CF, and parents and relatives of CF children and adults share information about cystic fibrosis.

For those in California, the GHPP (Genetically Handicapped Persons Program) presentation from October 2007 is now available! Joleen Heider-Freeman and Gloria Padre describe this state-funded program which coordinates care and assists with medical costs of persons with an eligible GHPP condition, such as Cystic Fibrosis. A valuable resource for those on GHPP or contemplating the program.

The CFRI has just recently received the coveted 4-Star rating from Charity Navigator for sound fiscal management. We celebrate knowing that our community continues to be served effectively and efficiently.

If you enjoy premium wine at affordable prices, CFRI has discovered a Monterey County vineyard owner and winemaker who shares your wish.

Carroll Jenkins, Executive Director, CFRI
The Cystic Fibrosis Research Inc.

Alex Jenkins, CFRI Retreat
The Cystic Fibrosis Research Inc.

CFRI Day Retreat

CFRI Day Retreat scholarships, registration forms and review scheduling will become available in January. Please contact David Sohoo if you are interested to learn more.

2008 Year Ahead

CFRI's 21st Annual Education Conference
"Living a Medical Miracle: CF Today and Tomorrow" - August 1-3, 2008 at the Sofitel San Francisco Bay.
CFRI's Annual Teen & Adult Day Retreat "Club Med" - Vallombrosa Conference Center, Menlo Park, CA - August 3-8, 2008.
CFRI's Annual Golf Tournament - August 4, 2008 at Cinnabar Hills Golf Course, San Jose, CA.

The CFRI Fall Newsletter contains rich articles and highlights of the 21st Annual Education Conference & Retreat, overviews of CFRI supported research projects, introductions to innovative programs and a host of exciting reading.

Visit the CFRI PDF Web Resources:

Cystic Fibrosis Website Guide

Cystic Fibrosis in the Classroom

Read "Special Gifts", by Lou Ann Alexander, a member of CFRI. She shares with you a glimpse of her family's journey with cystic fibrosis and their hope for the future.