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CysticFibrosis.com
January 2007 |
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Over the years we realize and appreciate the dedication and enthusiasm you share with us at CysticFibrosis.com. This newsletter is dedicated to keeping you informed with our site. We thank the CF Community for your 10 years of commitment.
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| 2007 BEF Scholarships |
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Sack that Quarterback!
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At the end of NFL season, money raised from Sacks for CF will be awarded to 15 recipients with Cystic Fibrosis who strive for therapy adherence and academic success. Applicaton Deadline: February 23, 2007
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BEF Lung Transplant Grant Program
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While the cost of transplantation is typically covered by most insurance companies, travel and relocation costs are typically absorbed by the patient's families. The BEF Lung Transplant Grants Program is designed to help families cover the expenses that are not covered by their insurance. Read more…
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Click here to view our forums. See what the CF Forum Community is talking about.
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A blog is basically a journal that is available on the web. The activity of updating a blog is "blogging" and someone who keeps a blog is a "blogger".
Visit our users' blogs here.
Sign up today and spread CF awareness with your blog.
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View amazing photos and art work submitted by the CF users.
Click here
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Welcome to the “food issue”. Introducing the latest vitamin formulation helping the malabsorption issues involved with CF, vote for your favorite recipe in our “Recipes” section, tax tips that may save you money by listing your food expenses!
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| Welcome our new sponsor Axcan! |
AXCAN (our latest sponsor) is now answering questions in the Nutrition Section of our forums!
Their new vitamin AquADEKsTM will be available to the adult CF community early this year. It is available now in the pediatric drops.
“AquADEKsTM is a new, innovative vitamin formulation that addresses the problem of nutrient absorption in CF patients.
read more
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| Hot out of the oven, our updated Recipe Section |
Visit our newly updated Recipe Section. Bill has scanned the forums and blogs for all the recipes. You can rate the recipes too!
Add a recipe or two!
Sponsored by AXCAN the maker of AquADEKsTM
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| TAX TIPS using a Food Log |
This is a quote from LouLou in our forums:
“One of the most valuable pieces of advice I have gotten from this site was from Julie regarding taking tax deductions for medical, supplement, electric and FOOD. I always knew this was possible but thought the task was too daunting. She was kind enough to share a spreadsheet she'd created to track all the information. I did it in 2005 and got back thousands of dollars I wouldn't have gotten back otherwise. It was so advantagous to do that I recently redid my 2004 taxes!!
Please note that these expenses must exceed 7.5% of your taxed income to take as a deduction.”
read more
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| Word to the wise winner |
The word to the wise is EFFICIENT which means perfoming or functioning in the best possible manner with the least waste of time and effort; having and using requisite knowledge skill and industry…
Thanks Julie for giving of your valuable information…you save us time!
Enjoy your gift from 1-800Diapers!
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| Mastering Private Messages |
Private messages have become a big part of the forums for many users. We’ve increased the amount of private messages you can store from 200 to 1,000 due to the demand.
Most people just send and receive private messages, but many of the features go unnoticed. In this article we’ll work our way around the private messages to show you all the features you might not have known where available.
read more
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| Remembering Troy Champion Badyna |
Born to Joe & Davida Badyna on September 30th, 1968 in Toledo Ohio.
'Luckiest Man on Earth'
This is the title Troy used for his blogspot address on the computer and this is exactly how Troy lived his life. Troy accomplished so much throughout his life, he was an athlete, a graduate, successful businessman, volunteered in the community, absolutely loved The Ohio State Buckeyes, The Detroit Tigers, Mohammad Ali, The Dallas Cowboys, Nostalgia, Old barns in the middle of corn fields, playing golf, and received countless awards for all of his achievements BUT, being Troy's older brother and life-long friend, I can tell you that he does not want to be remembered by any of those.
read more
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| Our Mission |
The mission of www.CysticFibrosis.com is to provide support, education and hope for those suffering from cystic fibrosis, their caregivers, families and friends.
read more
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