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CysticFibrosis.com
January 2007 |
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Over the years we realize and appreciate the dedication and enthusiasm you share with us at CysticFibrosis.com. This newsletter is dedicated to keeping you informed with our site. We thank the CF Community for your 10 years of commitment.
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| 2007 BEF Scholarships |
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Sack that Quarterback!
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At the end of NFL season, money raised from Sacks for CF will be awarded to 15 recipients with Cystic Fibrosis who strive for therapy adherence and academic success. Applicaton Deadline: February 23, 2007
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BEF Lung Transplant Grant Program
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While the cost of transplantation is typically covered by most insurance companies, travel and relocation costs are typically absorbed by the patient's families. The BEF Lung Transplant Grants Program is designed to help families cover the expenses that are not covered by their insurance. Read more…
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Click here to view our forums. See what the CF Forum Community is talking about.
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A blog is basically a journal that is available on the web. The activity of updating a blog is "blogging" and someone who keeps a blog is a "blogger".
Visit our users' blogs here.
Sign up today and spread CF awareness with your blog.
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View amazing photos and art work submitted by the CF users.
Click here
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Welcome to our “picture issue”! Look inside for pictures of Steve Keiles, BillD and the CysticFibrosis.com Team. Thanks to you, we’ve tripled our newsletter distribution since October 2006! Happy New Year from everyone at www.cysticfibrosis.com!
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| Meet Steve Keiles of Ambry Genetics |
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CysticFibrosis.com's “Resident Genetic Counselor”
I had the pleasure of speaking with Steve last October at the National CF Conference in Denver, CO. Over the past 10 years, there have been many gene related questions in our forums. read more
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| Blocking Users by BillD |
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Words can be very emotional. Words can be strong, encouraging, supportive and hurtful. CysticFibrosis.com is a patient driven community. We allow free expression and we moderate. For ten years, we have existed as a model site for our community, users, professionals, and sponsors. We encourage direct interaction. It is human, it is real. read more
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| CysticFibrosis.com to Launch CF Tube |
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The hugely popular Youtube.com has inspired the creative team at CysticFibrosis.com to create its own medium for self expression. We are creating CF Tube, a broadcast compilation of instructional, educational, inspirational and personal video casts. read more
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| CysticFibrosis.com New Look for 2007! |
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With the collaboration and enthusiasm of Langs Design, a design studio that has been supporting the CF cause for many years, CysticFibrosis.com is proud and excited to announce a new look and navigation for 2007! read more
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| Word to the Wise Winners - January |
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The Words to the Wise are "Tradition" and "Believe".
The winner of "Believe" is Amber.
"Amber is a breath of fresh air. She is a very kind and a Beautiful Soul. Her picture and the way she writes melts my heart. I see her ..." read more
The winner of "Tradition" is VMHoward.
"In my many years of Hebrew schooling, tradition was always present. You may have heard Tevya singing about it in Fiddler on the Roof..." read more
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| Our Tour |
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Through your blogs, you have shown us who you are and where you are. We feel it is only right to do the same. Welcome. read more
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| Upcoming Newsletter Features |
- TAX TIPS for CF’ers
- the Power of the CFWIKI
- AXCAN and Smiths Medical launch brand new products for the CF community
- the opening of our CF Store
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| Recipe for a Happy New Year! |
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- Anonymous
Take twelve fine, full-grown months; see that these are thoroughly free from old memories of bitterness, rancor and hate, cleanse them completely from every clinging spite; pick off all specks of pettiness and littleness; in short, see that these months are freed from all the past-have them fresh and clean as when they first came from the great storehouse of Time. Cut these months into thirty or thirty-one equal parts. Do not attempt to make up the whole batch at one time, but prepare one day at a time.
Into each day put equal parts of faith, patience, courage, work, hope, fidelity, liberality, kindness, rest, prayer, meditation, and one well-selected resolution. Put in about one teaspoonful of good spirits, a dash of fun, a pinch of folly, a sprinkling of play, and a heaping cupful of good humor.
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| Our Mission |
The mission of www.CysticFibrosis.com is to provide support, education and hope for those suffering from cystic fibrosis, their caregivers, families and friends.
read more
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