Welcome! March brings Spring, DayLight Savings and most importantly, the awaited new and improved CysticFibrosis.com site! The team has been inspired to take our online CF community and our efforts in online health care to the next level, and with the help, enthusiasm and energies inspired by all of you, we are doing just that.

Our first step was to organize our growing and developing library of CF information and resources. We hired Langs Design to help us implement our new ideas and give us improved look and feel, navigability and functionality. Langs Design has become an integral part of our team. We are appreciative and thankful for their tireless efforts, ideas, creativities and most of all the collaborative effort to upgrade and update CysticFibrosis.com

Once in a lifetime, you are fortunate to meet up with someone who inspires, intrigues, motivates and even challenges you to look beyond what is in front of you. Jeanne Barnett, Founder, Principal of CysticFibrosis.com does this every day. Jeanne's "Dream", has been to change the face of healthcare using the power of the Internet. Eleven years ago, Jeanne and her husband, Peter Barnett, DPT,OCS envisioned that they could begin this journey by building a niche, health library of domain names. This library is Medrise.com. You can visit the Medrise.com library on the bottom left hand side of the new CysticFIbrosis.com homepage. Over the years, through trial and tribulation, the rise and fall of the Internet, Jeanne has remained quiet, focused, and patient. Honing and revising her mission, Jeanne strives to build the most unique, inviting and engaging online patient driven health care model here at CysticFibrosis.com

Online, patient driven healthcare is the today and the tomorrow. There are many segues for patients and loved ones to manage and get involved with their health care using the power of the Internet. We realize that we are the administers and the advocates of our own care. We hunt, gather, absorb, and interpret all kinds of information and education that we find out there. At CysticFibrosis.com, it is our goal to organize this information and education. Our mission is to work together with the thought leaders, foundations, sponsors and of course, all of you to provide information, education and strengthen hope for the cure.

The benefits of building CysticFibrosis.com over the years have been the realization that we are a large and trusted resource. We are an online health community that is far beyond forums and blogs. We inviting our relevant sponsors to interact with us and take advantage of this unique and uncharted opportunity to reach their audience. Interactive sponsorship is the very near future. Patient managed and consumer managed relationships are being sought by the leaders and makers of our drugs and products. Where better to be involved as a sponsor than at your online patient community?

Another extraordinary characteristic of CysticFibrosis.com, is that Jeanne moderates it, 24/7. Jeanne is watching, analyzing and honing in on the needs of the CF community. She delivers her findings and messages to the team, and we work to keep pushing that envelope. We have so many creative ideas in store for 2007. We have been building our team as well. We are busy aligning with strategic partners, consultants and sponsors. We believe that together, we can change the face of healthcare. We can strengthen hope.

We bring the new CysticFibrosis.com site to you with pride and gratitude. We don't forget our roots, we move forward boldly and we look to a future filled with creative opportunities, interactive tools, and exciting relationships.

Enjoy!

Sarah K