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Welcome e-Patients: August proved to be a busy month for CysticFibrosis.com! East met west as we traveled from Cedar Grove, NJ to Redwood City, CA where we participated in the CFRI’s 21st Education Conference. We are sincerely appreciative to Carroll Jenkins, Executive Director of the CFRI, and the entire CFRI staff for their commitment, dedication, and hospitality. It is the CFRI's support and contribution which has enabled us to bring to you the conference highlights and selected coverage of the participant interviews. Conference participants included doctors, researchers, scientists, parents, caregivers, foundation members, Heroes of Hope, and CF patients. Let’s begin our video interviews with Tiffany Christensen, recipient of two double lung transplants and author of the book “Sick Girl Speaks!”. Tiffany helped open the conference with a dynamic, cleverly entertaining, yet educational “one woman show”, “The Permanent Me” - coming soon to CFRI DVD. Watch and listen to Tiffany’s video interview with CysticFibrosis.com and be inspired! Jeanne Barnett, Founder From the Blogs... Jeanne's pictures from the CFRI conference. Back to school blogs:
Cystic Fibrosis in the Classroom Publications CFRI is pleased to announce that Cystic Fibrosis in the Classroom is available to our CF community in English and Spanish versions. We hope this will be an important resource for all who have children attending school, teachers, professors, nurses, and school administrators. For hard copies, download the order form by clicking on the picture below or contact the CFRI at (650) 404-9975 or cfri@cfri.org.
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Tiffany Christensen, Author "Sick Girl Speaks!" Listen to Tiffany, a CF patient, as she speaks about helping patients survive the health system. "Tiffany believes that, given her life’s experiences, it is her duty to lend a hand to those struggling to find their way through the world of illness. Since 2005, she has participated in many exciting speaking events, enjoyed coaching those in the medical maze and finished her book, Sick Girl Speaks! " Order your copy of "Sick Girl Speaks!" from Tiffany's website and she'll autograph your personal copy!
BEF is offering full "online" scholarships to students with CF and immediate family members. Currently, there are 7 scholarships immediately available. Applications are available at www.cfscholarships.com and the new deadline is Friday, September 5th 2008.
Learn and explore in Second Life. New Citizens Incorporated (NCI) of Second Life now offers classes on CF University campus. These classes will help you master basic techniques in Second Life. Whether you are looking to build your avatar, build a property, or just want to explore and navigate around CFU, NCI classes will get you up to speed in this ever-changing virtual world. Already have an avatar? Introduce yourself! | |||
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