The Servers e-Patient Flash

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Welcome e-Patients: 

In our November eFlash, we focus on the exciting progress in CF research.  We welcome CF Living to CysticFibrosis.com.  If you haven't already done so, we encourage you to take advantage, by signing up to receive the customized, educational programs CF Living is offering to our members.

CysticFibrosis.com interviewed Carlos Milla, M.D., Stanford University Medical Center, Stanford, CA at the CFRI 21st Annual Education Conference. Dr. Milla discusses progress in B. Cepacia treatments, CFTR protein therapies, and lung health.

Carroll Jenkins, Executive Director, CFRI (Cystic Fibrosis Research Inc.) reminds us in a word, the mission of the CFRI is to Respond to the needs of the CF community.  Listen as Carroll welcomes us to the CFRI Conference with the mission of responding to the CF community on so many levels.

Sincerely,

Jeanne Barnett, Founder
CysticFibrosis.com since 1996


Second Life

CF University

For our Second Life audience on Boomer Island’s CF University, we will have instructional classes on getting started in Second Life!

New Citizens Incorporated (NCI) of Second Life now offers classes on CF University campus. These classes will help you master basic techniques in Second Life. Classes begin at 12pm EST and 9pm EST every day and last 1 hour. They are open to the public and completely free of charge. For more information on class schedules, visit http://www.nci-sl.org. Click on "Schedule PDF" under the "Education" tab on the home page.

Already have an avatar? Introduce yourself!

See you on Boomer Island!


From BEF

The Outstanding Compliant Patient Program aims to recognize cystic fibrosis patients who are practicing compliance to therapies that show individual improvement in physical and mental well being.

Please click here for patient nominations.

 

Carroll Jenkins, Executive Director, CFRI
CFRI 21st Annual Education Conference

  • Welcome
  • Theme - Pearls!
  • Mission - Responding
  • Funding - Research Projects


Carlos Milla, M.D., Stanford University Medical Center
CFRI 21st Annual Education Conference

Dr. Milla answers your questions:

  1. What sort of progress is being made for the treatment of B. Cepacia?
  2. Of the therapies that are being developed to correct the faulty CFTR protein, which is the most promising?
  3. Is there a correlation between baseline blood glucose and lung health? If so, what causes that? Can it be remedied?

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