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Dear e-Patients,
Welcome to the “new look” at CysticFibrosis.com! Not only the design is new, but now the Search Our Site button allows you to search through over 350,000 messages quickly and easily. We have many more new features in the works, making our e-Patient community even more interactive.
Many of the discussions happening at the forums now revolve around having a holistic approach to healthcare and complementary medicine. Hence, we have oppened a new Green category at the forums.
Our video, from the 2008 CFRI Conference, features Dr. John Mark answering our questions on Integrated Medicine.
Elizabeth Nash was a Doctor of Molecular Genetics. After her death, Elizabeth's parents continue her fight against CF. They have established the Elizabeth Nash Foundation. Listen, as her dad, Jim, gives the details of Elizabeth’s amazing life and how the Foundation continues her work, including scholarships for the CF community.
Be sure to sign up for the CFF Webcast on teaming up with your healthcare providers to get the most of your healthcare coverage.
The Spring in the Northeast United States is wondrous! I hope you take the time to enjoy the gifts of your seasons!
Make a Wish!
Since 1980, the Make a Wish Foundation has been granting wishes to children diagnosed with life-threatening medical conditions.
There are 4 steps to having a wish granted:
- A referral may be made to the Foundation from medical professionals, parents or even children themselves…
- A child between the ages of 2.5 to the age of 18 who is diagnosed with a life-threatening condition
- A wish team (there are 30,000 enthusiastic volunteers) helps each child bring forth and design their personal wishes.
- Our cysticfibrosis.com community is enriched in hearing about the variety of wishes that have been granted over the years!
Find out more by visiting http://www.wish.org/
Read about our members’ experiences with this great organization!
Gabrielle’s Blog
A pin designed with the help of Gabrielle to raise money and awareness for CF to be sold on line and in all Hard Rock Café’s!Jesse chose an amazing trip to Hawaii which included Pearl Harbor (Josh is a WWII buff!)
What about Josh?
Read Jane’s blog to find out about Josh…
Beautiful Soul shares her video about her room makeover!
After a slightly rainy trip to DisneyWorld with their 8 children, JustOneMore and TestifytoLove stopped in to see Jada and Scott and their 8 children on the way home!
Zoe4Life
John Mark, M.D., Packard Children's Hospital of Stanford, Integrated Medicine
CFRI 21st Annual Education Conference
Jim Nash, Board of Directors of the Elizabeth Nash Foundation, father of Elizabeth Nash
CFRI 21st Annual Education Conference
Elizabeth Nash Foundation
Francis Collins, M.D., Ph.D.
Director of the Human Genome Project, identifier of the CFTR, sings Dare to Dream!
From the Forums...
Join in the varied conversations... everything CF!
Read the Blogs! Take out a Blog! Start Blogging!
Become a member at CysticFibrosis.com and join in our live discussions at the forums and blogs now!
