Got Questions? Ask The Community!

The following are some of the current Hot Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

Welcome to the H1N1 discussion!
"Hello CysticFibrosis.com community - My name is Dr. Joan Germana, and I am the CF Center Director at Schneider's Children's Hospital in Great Neck, NY. Please post any questions you may have regarding the H1N1 virus below, and I will respond. I look forward to our conversation!"    Click here to read more

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Would you recommend a port?
"yes or no answer- one sentence explaination. assume patient is getting PICC lines twice every 18 months..."    Click here to read more

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What were you most unprepared for in having a kid with CF?
"...I have a media interview coming up and I am stumped by one of the questions. Can you help me? I would rather speak for all of us than just for myself... Thanks! Wish me luck... it will be a great chance to bring awareness about CF. Here's the question: What would you say that you were most unprepared for when it comes to parenting a child with CF?"
Click here to read more

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CF MediWidget

Dear CysticFibrosis.com Community, It is with sad and heavy hearts that we report the passing of Lauren a.k.a. lightNlife last week. Her family and husband, Brad, are in our thoughts and prayers. As I wrote in the forums, Lauren has touched the lives of many people here on Cystic Fibrosis.com. I have so many happy memories of getting to know Lauren and loving her through her work, her blogs, her attention to detail, her fun-loving spirit, and her fashion as Loltjke on SecondLife! She wrote articles for our newsletters and all the questions for the 2008 CFRI interviews on CFTube. We "kicked off" our MediWidget with information from her Medicine Cabinet. The MediWidget now includes supplemental feeding equipment and osteopenia medication. Post transplant medications are being researched right now. This was one of her final messages to us...and I know we are blessed by her presence! "Every extra little bit I get to spend in your company is a blessing." Our time together was much too short.

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Winning With Cystic Fibrosis Teleclass

Families of people with CF as well as CFers themselves are invited to register for Lisa Greene’s upcoming teleclass on parenting and motivating children with CF. Click here to learn more about the class, schedule and fee.

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CF Past Poll Results

          

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CF Educational Webcast Series

Interested in learning more about living with cystic fibrosis? Checkout the CF Educational Webcast series on Pulmozyme.com, which provide patients and their caregivers with valuable information on cystic fibrosis and insights into how to handle the challenges of CF in their everyday lives. Both of these webcasts are now archived and available to view on http://www.pulmozyme.com/resources/webcast/archive.

For Caregivers and Family Members
Dr. Susanna McColley discusses best practices in CF care, including disease progression, care goals and medication. Kelly Weber, and her son Jake Weber, age 8, who has CF, are on hand with Dr. McColley to share their stories and advice.

For Young Adults and Teens with CF
Dr. Marcia Katz and CF patient Casey Flaherty, 25, and her mother, provide guidance and strategies to help CF patients and their family members manage the transition into adulthood successfully. The webcast explores important issues, including balancing life, work and school and establishing the best possible CF care routine.

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