Got Questions? Ask The Community!

The following are some of the current Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

Mel's (Jazzysmom) Hospital Updates...
"11/19/09: Mel was admitted today to her normal hospital, the floor had been changed from the 8th (the one she has gone to her whole life) to the 15th. The rooms are smaller, but painted a nice green instead of plain white. Her window also looks out onto the Hudson River, she was happy about that..."    Click here to read more

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Courtney Got Her Wings...
"May you RIP & Breath easy now I can just imagine you breathing a big sigh of relief as you are held in Jesus' loving arms..."    Click here to read more

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I got my second chance!!!
"Hey everyone---I was discharged from Columbia on November 9th...waiting for the valet parking to bring the car around...and I got THE CALL....."come back" they said.I was skeptical and not in the mood for another dry run. But by 2am, they told us it was a GO..."
Click here to read more

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CF MediWidget

Dear CysticFibrosis.com Community, Thanksgiving in the U.S. is upon us and we are reflecting on the struggles and blessings of our members at CysticFibrosis.com. We are thrilled and grateful for the happy news of Lex whose transplant proceeded so well. Yet our hearts go out to the family and friends of Courtney/SpicyOne and others whom we have recently lost. Our thoughts also dwell on those of you in the hospital and your loved ones, hoping that you may find strength and healing this Thanksgiving. For Melissa/JazzysMom and everyone who finds themselves in the hospital, we offer Blake/Lance2020x's beautiful prayer, Lord Jesus I pray you send angels into every corner of her hospital room to give her peace and strength and release from pain. Give wisdom to all the doctors and nurses surrounding her care, and bless her with vigorous healing and send her back to us sooner than believable! We give thanks for the incredible journey that each of us is on.

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CysticFibrosis.com Forum Updates

Please note that we have made several changes to the Forum Topics (the message board categories) which we hope will better organize the fantastic information our members share with each other. We hope these changes are helpful. Please feel free to ask any questions or let us know if you are having trouble using the new topics.

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CF Past Poll Results

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Winning With Cystic Fibrosis Teleclass

Families of people with CF as well as CFers themselves are invited to register for Lisa Greene’s upcoming teleclass on parenting and motivating children with CF. Click here to learn more about the class, schedule and fee.

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CF Educational Webcast Series

Interested in learning more about living with cystic fibrosis? Checkout the CF Educational Webcast series on Pulmozyme.com, which provide patients and their caregivers with valuable information on cystic fibrosis and insights into how to handle the challenges of CF in their everyday lives. Both of these webcasts are now archived and available to view on http://www.pulmozyme.com/resources/webcast/archive.

For Caregivers and Family Members
Dr. Susanna McColley discusses best practices in CF care, including disease progression, care goals and medication. Kelly Weber, and her son Jake Weber, age 8, who has CF, are on hand with Dr. McColley to share their stories and advice.

For Young Adults and Teens with CF
Dr. Marcia Katz and CF patient Casey Flaherty, 25, and her mother, provide guidance and strategies to help CF patients and their family members manage the transition into adulthood successfully. The webcast explores important issues, including balancing life, work and school and establishing the best possible CF care routine.

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