News from the Annual North American Cystic Fibrosis Conference

The CF Conference in Minneapolis was inspiring and vastly educational. We wanted to share with you some of the high points from the experience...

Francis Collins, head of the National Institutes of Health (NIH), pictured
here with Jeanne Barnett of CysticFibrosis.com on day 2 of the conference.

Did you know that CF was a major motivator in the Human Genome Project, which is now helping scientists understand more than 7000 diseases and conditions?
View the presentation of Francis Collins' speech at the NACF Conference.

View the Dare to Dream video.

Current and past conferences presentations available for download here.

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  Got Questions? Ask The Community!

The following are some of the current Hot Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

What are your top 3 reasons for NOT PARTICIPATING in a clinical trial?
"I'm curious why so many people don't participate in clinical trials. In order to make advancements the drugs in the pipeline need participants. The CFF keeps telling us that lack of participation is causing a delay..."    Click here to read more

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Emily has been nominated and needs votes
"Qdoba is giving a winner $5,000 to the charity of their choice. Emily Schaller has been nominated and needs our votes..." Click here to read more

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SPECIAL HALLOWEEN CHAT SCHEDULED
"Thank you to everyone who voted on the poll. Our First Halloween Chat will be on Sunday, October 25 at 8PM Eastern Time I hope that we have the turnout that we did for our first Holiday Chat. Hope to see you there!"   Click here to read more

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Halloween Crafts by beautifulsoul

Black Spider Craft

Mummy Candy holder Supplies: Quart size plastic container 4oz plastic water bottle small cotton balls wiggle eyes cheese cloth scissors glue utility knife (parent's do this part) Instuctions: Cut the top off quart container and 4oz water bottle. Glue the cotton ball in the middle of the 4oz bottle and glue the water bottle cap in the midde of the quart container for the noses. Glue on wiggle eyes. Cut strips of cheese cloth. Glue one end of cloth to the container/bottle and wrap the cloth around covering the nose but not the eyes. Continue adding layers of cloth gluing down lose ends. Fill with candy.

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MediWidget Check out the latest features for the MediWidget! You can now choose the category and condition. Look for new categories all the time. This widget is designed and updated by our e-patient community and will soon be downloadable!

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CF Educational Webcast Series

Interested in learning more about living with cystic fibrosis? Checkout the CF Educational Webcast series on Pulmozyme.com, which provide patients and their caregivers with valuable information on cystic fibrosis and insights into how to handle the challenges of CF in their everyday lives. Both of these webcasts are now archived and available to view on http://www.pulmozyme.com/resources/webcast/archive.

For Caregivers and Family Members
Dr. Susanna McColley discusses best practices in CF care, including disease progression, care goals and medication. Kelly Weber, and her son Jake Weber, age 8, who has CF, are on hand with Dr. McColley to share their stories and advice.

For Young Adults and Teens with CF
Dr. Marcia Katz and CF patient Casey Flaherty, 25, and her mother, provide guidance and strategies to help CF patients and their family members manage the transition into adulthood successfully. The webcast explores important issues, including balancing life, work and school and establishing the best possible CF care routine.

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