Got Questions? Ask The Community!

The following are some of the current Hot Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

Swine flu shot question
"i know there have been multiple topics on this so forgive me for starting a new one. at my doctor's appt last week my doctor told me i would have to get 3 shots for the flu this year. i didn't vocalize to her at the time that i do not want the swine flu shot..."   
Click here to read more

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In the newspaper today!
"Today, The Republican American newspaper out of Waterbury, CT has included a story about me, my cf, my clincal trial experience, and the upcoming cf fundraiser here in Southbury, An Evening of Comedy & Hope, that I'm on the planning committee for..."   
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EMILY IS ON HER WAY TO THE ELLEN SHOW!
"Many of you might know that our own Emily a/k/a letsrockcfem has started her cross country venture!..."    Click here to read more

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CF MediWidget

Learn Compare Adhere. This is the new tagline for our MediWidget. Learn new information, compare your options and optimize your adherence to your treatment plan. The Health Opinion Leaders and Ennio have been busy! The descriptions are now more comprehensive and there are 50 more medications to investigate. This has been a huge task and we applaud all the patients, parents and caregivers who continuously strive to make themselves experts in CF medication and equipment. We hope this helps. Soon, we'll be adding a large web-page interface for you to view more details, sort through categories of medication and equipment, and eventually search through the 400,000 messages at CysticFibrosis.com for personal experiences with the meds and devices. Let us know what features and products you want to see in the MediWidget! In the NorthEast US, the days are crisper and the weather is beautiful. Enjoy your part of the world!

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CF Educational Webcast Series

Interested in learning more about living with cystic fibrosis? Checkout the CF Educational Webcast series on Pulmozyme.com, which provide patients and their caregivers with valuable information on cystic fibrosis and insights into how to handle the challenges of CF in their everyday lives. Both of these webcasts are now archived and available to view on http://www.pulmozyme.com/resources/webcast/archive.

For Caregivers and Family Members
Dr. Susanna McColley discusses best practices in CF care, including disease progression, care goals and medication. Kelly Weber, and her son Jake Weber, age 8, who has CF, are on hand with Dr. McColley to share their stories and advice.

For Young Adults and Teens with CF
Dr. Marcia Katz and CF patient Casey Flaherty, 25, and her mother, provide guidance and strategies to help CF patients and their family members manage the transition into adulthood successfully. The webcast explores important issues, including balancing life, work and school and establishing the best possible CF care routine.

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