CysticFibrosis.com

  Got Questions? Ask The Community!

The following are some of the current Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

Preparing for Transplant Eval
"I'm going to be evaluated at Duke soon for a transplant. Has anyone ever been there? I'm just wondering what to expect, what kind of tests they are going to run, just anything special I need to know..."   Click here to read more


After transplant questions
"after transplant: do you still have a constant 'hoarse throat' voice that is really annoying? do you still get exhausted after doing 1 errand or have to limit yourself on activities based on how much energy you'd be using during the day?... "   Click here to read more


News Show "Fighting for Breath" Aired in 1999 Available for $29
"In 1999 ABC News, as part of the Hopkins 24/7 Series followed and filmed me pre-transplantation, during the actual transpalant and recovery, and going back to work. The documentary also included the stories of three women of different ages and stages of CF..."   Click here to read more


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Dear CysticFibrosis.com Community,

Have you noticed a new feature on our home page called the CF Tag Cloud? It is a visual depiction of the most popular words used in our forums and blogs. I hope this is helpful in giving you a visual idea of the relative weight of our words (bolded and in different sizes). Just another gift from technology!

Many new inventions are on the horizon. I wonder if you are using Pandora.com for a an exercise music playlist? Stay tuned to my Mobile Health Category for the latest Mobile tools and apps.

Watch for our survey next week. It has to do with compliance and adherence and what inspires you to work so hard to stay healthy.

Summer has been so hot in the northeast US. I hope your seasons are more bearable!


Jeanne Barnett


CF Current Poll Results




 
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