Got Questions? Ask The Community!

The following are some of the current Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

Confused, concerned -- and a little peeved
"I've learned so much from recent discussions here, so I'm hoping that maybe someone here can teach me info that I'm not getting from our doctors. My eight yr old..."
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New Lungs For Jess! (nu65)
"Hey everyone, Jess got a call for potential new lungs this morning at 4:30. She is at Duke now, awaiting the word on whether these are the perfect set for her..."
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"Seven Letters That Save My Life" by Dottie Lessard
""Seven Letters That Saved My Life" by Dottie Lessard is a book with an everlasting message of hope, love and undying faith to beat all odds. As you read Dotties book, you will..."
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Dear CysticFibrosis.com Community, May is Cystic Fibrosis Awareness Month. In this newsletter I want to highlight the fact that you may have more political power than you think. Did you know that one of our members wrote an email to her state senators and within hours she had insurance coverage for her grandson's Vest and other meds? Click here to learn more about how she empowered herself. Several of our members have recently made beautiful and compelling fundraising videos as well: LouLou and Isaac, Sara and Connor (blog entry from 4/22) Below is a list of some other exciting activities and accomplishments of people in our community: CF Awareness Bracelets Dottie's book Jerry's CF Windsprints Our prayers and condolences go out to the friends and families of Emily and Sonia. RIP Jeanne Barnett

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