Got Questions? Ask The Community!

The following are some of the current Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

Positive Attitude or Denial?
"So I posted about 2 weeks ago that at the ripe old age of 39, I was dx with CF. Since then, people I have told either say stupid things like "We all die from something", just don't know what to say or start to cry. I, on the other hand, have yet to cry..."
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Laughter
"Does laughter have a positive effect on the lungs of people with CF? While laughing today I was thinking "man, this probably knocking a bunch of crap loose!" Just wondering other's thoughts on this..."  
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thinking about...
"I had an idea this morning as I turned on my nebulizer to make samplings of the sound of the nebulizer, vest, inhaler, coughing, etc. and use these noises as a background for music. Music concrete, CF style. Of course I'd play bass on the tracks..."  
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Dear CysticFibrosis.com Community, The above are some interesting threads and as always, thoughtful and well written. I can't wait to hear the Sounds of CF symphony. I know it will be fascinating to hear the sounds of your day turned into music. What a technical feat! I think you will find the webcast sponsored by Genentech to be engaging and informative. Dr. Barbara Chatwick mentions studies that show early treatment of CF, even before symptoms present themselves, really helps. Evidence of harm from the disease has been found in very young children who may appear healthy and not yet show outward signs of CF. Of course, this has been a topic of conversation on our site for 15 years, as people compare and contrast how centers all over the world treat cystic fibrosis. It may be a good idea to ask your doctor or center to listen to the webcast on December 7th so that you may more directly discuss the issues presented. In the webcast, Natalie, a mom of twins with CF, shares some great ideas for establishing an early management plan. Click here to register for the webcast Thanksgiving is a good time to consider all the blessings that surround us. With Education, Support and Hope, Jeanne Barnett

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CF Current Poll Results

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CF Living Webcast - Cystic Fibrosis (CF): Why appearing healthy is only part of the story

Coming soon! We encourage you to check out a brand new, Genentech, Inc.-sponsored webcast entitled "Cystic fibrosis (CF): Why appearing healthy is only part of the story," featuring an expert Q&A. Hosted by Dr. Barbara Chatfield, Professor of Pediatrics at the University of Utah and director of the Intermountain Cystic Fibrosis Center, the webcast will discuss the importance of early diagnosis and early disease management, even when no symptoms are present. Natalie Brown, mother of 8 year old twins with CF, will also be featured in the webcast to talk about practical tips for everyday CF care. The webcast will premiere on Tuesday, December 7th at 5:30pm PT/8:30pm ET. Register today at www.cfliving.com to ensure your spot to watch this exciting educational webcast!

Pulmozyme indication statement:
Daily administration of Pulmozyme® (dornase alfa) along with standard therapies is indicated in the management of cystic fibrosis patients to improve lung function. In patients with a forced vital capacity (volume of air exhaled with maximum effort and speed) greater than or equal to 40% of predicted, daily administration of Pulmozyme has also been shown to reduce the risk of respiratory tract infections requiring the administration of injectable antibiotics. In our pivotal study, safety and efficacy of daily administration has not been studied in patients beyond 12 months.

Important Safety Information:
Pulmozyme should not be used in patients who are allergic to any of its ingredients. Pulmozyme should be used along with standard therapies for cystic fibrosis. When starting Pulmozyme therapy, patients may experience change in or loss of their voice, discomfort in the throat, chest pain, red watery eyes, rash, dizziness, fever, or runny nose. These side effects are usually mild and short-lived.

Pediatric Use:
Because of the limited experienced with the administration of Pulmozyme to patients younger than 5 years of age, its use should be considered only for those patients in whom there is a potential benefit in pulmonary function or in risk of respiratory tract infection.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.