Got Questions? Ask The Community!

The following are some of the current Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

HSS report
"Mobile matters, place shifting from hospitals to home. What you think! Read my new blog"
Click here to read more

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How...?!? This is really overwhelming
"This is SO overwhelming. Emily is home on IV's for the first time and trying to manage her care, plus 2 other children, plus anything else (hah! everything else is a disaster) just feels impossible. She's on 2 meds that take almost 2hrs to run (total)..."
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When there's a cure....
"Every once in a while I like to think about all of the CF-related parts of my day/life/thoughts that I am most excited to see end should there be a cure some day. Can we post some of those? It's always fun to dream about..."
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Dear CysticFibrosis.com Community, The northeast is ablaze with what the poet Gerard Manley Hopkins calls “the grandeur of God”. I hope wherever you are, you are enjoying some grandeur of nature. Several threads on our forums have been about whether to be treated at home or in the hospital. The debate continues about safety, convenience, restfulness, and quality of care. On March 31, 2011, the HSS in the US has weighed in and you can read my blog to find out how they are calling for patients to partner with doctors, the use of mobile technology, and "place shifting" from expensive hospitals rooms to our homes. See how you have already weighed in and add more comments if you wish. Thanks Ennio, for the gift of the new Chat feature. Scan the QR code on the left and let us know what appears! I learn from all of you everyday: "If things are not as you wish, wish them as they are." - Yiddish Proverb With Education, Support and Hope, Jeanne Barnett

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CF Current Poll Results

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