CysticFibrosis.com

  Got Questions? Ask The Community!

The following are some of the current Topics in the forums. Follow the links below to view the postings and then Post your own comment - or just see what others are saying.

Advice Requested
"My daughter is now 8 and is beginning to ask questions about my treatments. I have chosen to not yet tell her the mortality issue that we face..."
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Patient directed clinical trials?
"Read my current blog at eyeforpharma to see how Innovative Pharma can capture the spirit of crowdsourcing and user-generated content in R&D..."
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Rogue cars, buses, and other cliches
"I will put this out there first of all: though I was diagnosed w/CF 25 years ago, there has been a considerable amount of energy spent on keeping me discouraged from forums and sites like these..."
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Dear CysticFibrosis.com Community,

We are saddened by the deaths of people in our community this spring, both those mentioned in the forums and any others who may have passed.

Perhaps we can all take comfort and inspiration from Sofia Levy, the latest Hero of Hope, as she is interviewed by Anabel Stenzel.

Abbott's CFCareForward program is awarding 40 students a $2,500 scholarship based on their achievements, essay and creative presentation submitted with the application. Of these 40, two students–one undergraduate and one graduate student–will each be awarded $19,000 for use in the upcoming school year.

Students can go to www.CFCareForwardScholarship.com/apply to apply online.

You may have noticed the QR code at the left of this newsletter, scan the code with your smartphone and the new mobile site for cysticfibrosis.com forums appears!

Click here to view our membership map. You may have to download Google Earth Plugin for your browser.

With Education, Support and Hope,


Jeanne Barnett


CF Current Poll Results




 

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