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 Storyboard
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Storyboard is a new feature to the CysticFibrosis.com site. This section is for the CF community to share stories they've written. Stories from family members are welcome as well. If you would like to have your work published on CysticFibrosis.com please e-mail it to storyboard@cysticfibrosis.com.

Always remember to contact your CF Center before following any of the information you read on CysticFibrosis.com.
  1. A mother's story
    My gorgeous daughter was born three weeks early on December 8th 2004. She presented with an enlarged abdomen and had to be operated on at Great Ormond Street Hospital. I found out on December 29th that she had CF and Meconium Ileus (the reason for her large tummy) which is apparently a classic... Read more

  2. From the Womb

    My story starts from the moment I found out that ! was pregnant.

     From that first moment I was told that I was expecting my 2nd child (after 9 years of the first) there was something inside me telling me that something just wasn't right.
    Of course I... Read more


  3. JJ's Story
    My son was two months old when I found out he had CF. He weighed 7lbs 5oz when he was born, he dropped 2 lbs in a few weeks. I didn't have a clue what was going on. The Dr. sent us to a hospital that did sweat tests and it was positive. He was in the hospital for 2 months trying to gain weight... Read more

  4. Life After CF
    Hello my name is Mary Duncan. I am 46 years old; I am married and have no children. My husband and I have a 5-year-old Jack Russell Terrier named Annie who keeps me from having time to think much about having a chronic illness. For years I’ve dealt with repeated sinus infections and lung... Read more

  5. My daughter Alexis
    Hello my name is Danielle and my daughter, Alexis, was diagnosed with cystic fibrosis is February 2006. To be honest I didn’t even know what the disease was. She had a few episodes of wheezing and trouble breathing, so I took her to the emergency room and they couldn’t tell what was causing it.... Read more

  6. My Twin Brothers
    I have twin brothers with Cystic Fibrosis, they are 33 years old. We lost one of the twins on October 25th 2006. We have lived their entire lives knowing that some day we would eventually loose to this disease. My brothers were "members" of the U of M for many years. God Bless each and every... Read more

  7. Newly Diagnosed 5-Month-Old Baby Girl
    I am a new mother of a 5month old baby girl, Liliana. My greatest dream for the future was having my first child. Unfortunately in August of 2003, I fainted 2 times and was taken to the emergency room. The doctor determined I had ovarian cysts and one had erupted. I was bleeding internally and... Read more

  8. Our son Reece
    Our son Reece is 3 yrs. old. He is the center of our world & has life by the horns. He was born 9lbs 6oz. 20 1/2in. He was sent over to our local children’s hospital the day after he was born. He had bowel obstruction. He stayed there for 8 long days. Since then he has been in & out of CHKD 5... Read more

  9. Proper Nutrition
    It is my belief that a daily intake of good healthy foods, will add quality years to our lives. In this article, I will discuss my own personal experience to explain why I changed my food intake. Over the years, I have discussed nutritional aspects of health with other people with Cystic Fibrosis.... Read more

  10. The Dieruf Family means it when they say “Breathin Is Believin”
    Cystic fibrosis is one of the most common genetic conditions. It causes chronic lung and intestinal problems, poor weight gain and other symptoms, usually beginning in early childhood. Although treatment for cystic fibrosis has improved, life span and quality of life remain limited. Cystic Fibrosis... Read more

  11. The world's greatest brother
    My name is Kim and I am 26 years old. I am writing to tell you about my brother Kenneth who was diagnosed with CF when he was 6 weeks old. He was a wonderful brother who tried to live his life as normal as possible under the circumstances. He had many surgeries growing up, but that still did not... Read more

  12. Through the Eyes of CF
    Risa, an Inspiration Hello, my name is Risa. I am 41 years old and I am am writing to share my story and offer inspiration to all of you live with cystic fibrosis. Discovery I knew that I had CF as a young child. At first I viewed CF through a child's eye as a source of attention from my... Read more

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